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Fun ways to raise funds

Organising your own fundraising activity is a great way to get active and social in support of people with Muscular Dystrophy, whilst raising funds and awareness for our cause. Follow the link for more ideas.

What is MD?

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Muscular dystrophy is a neuromuscular, genetic disorder which results in the progressive deterioration of muscle strength and function. The most common form in childhood is Duchenne Muscular Dystrophy, which can see a young boy using a manual wheelchair by the age of 8, and being completely dependent on an electric one by his early teens. Life expectancy for this disorder is usually only until early adulthood.

There are many other types of neuromuscular disorders, affecting people of all ages. While most forms of muscular dystrophy occur in babies or children, some others appear in late adolescence or adulthood. The incidence of persons with a neuromuscular disorder is estimated to be 100 per 100,000 head of population. It is estimated that there are more than 20,000 people in Australia who have some form of neuromuscular disease.

Researchers and doctors are learning more about the causes of muscular dystrophy and various treatments are being trialled to stop the progression of the disease. Nonetheless, through early diagnosis, proper therapy and support an increased quality of life is possible.



Upcoming Events

Tour Duchenne

09 Sep 2010 12:00am

MDNSW HOGS Activity Day

12 Sep 2010 12:00am

MDNSW Camp Carer Training Day

14 Sep 2010 09:00am

MDNSW Members Advisory Committee

16 Sep 2010 02:00pm

MDNSW Carers Advisory Committee

23 Sep 2010 10:00am



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