The board of Muscular Dystrophy NSW provides direction, support and governance to Muscular Dystrophy NSW. It currently has 6 full board meetings per year. Board sub-committees provide extra focus and skills to Muscular Dystrophy NSW and consist of the following:
- Client Services Committee
- Finance Committee
- Marketing and Fundraising Committee
- Research Committee
- Governance Committee
Each Director will serve on at least two Board Committees including at least one of the major Committees (being Client Services, Finance or Marketing & Fundraising)
Click here for more information about Muscular Dystrophy Association of NSW Board Charter.
The board consists of the following members:
Peter Debnam MBA, MAICD – President
Peter’s management experience began with his Navy service followed by executive roles in business development and general management in the aerospace and rural service industries.
He completed an MBA in 1993 before being elected to the NSW State Parliament the following year.
In Parliament for 17 years, Peter was a Shadow Minister in many portfolios and Leader of the Liberal Party and State Opposition between 2005 and 2007.
After leaving State Parliament in 2011, Peter has contributed much of his time and energy to serving on the boards of a number of charities and not-for-profit organisations.
Ian Williams MBA – Vice President
Ian Williams has over 26 years investment banking experience focused in funds management, real estate, finance and investment and is a founder and Executive Director of Linchpin Capital. Linchpin Capital is focused on superannuation, real estate, sustainability and corporate advisory services.
Ian has expertise in managing listed and unlisted funds management platforms, commercial and residential real estate, raising both debt and equity and has a strong experience with board audit and compliance procedures and prudential control of business operations.
Richard Arnheim BCom – Treasurer
Member Institute of Chartered Accountants in Australia, Fellow Financial Planning Association of Australia, Certified Financial Planner, Diploma of Financial Planning – Deakin University, Principal Arnheim Gillard Financial Consultants 1986 – 2008 and principal Arnheim Hornbrook Chartered Accountants 1986 – 2000, Authorised Representative and principal advisor of Shadforth Financial Group 2008- present.
Rick Arnheim from early teens has had a neuromuscular disease broadly similar to Limb Girdle Muscular Dystrophy.
Clinical A/Professor Kristi Jones MBBS, FRACP, CG(HGSA), PhD – Medical Director
Kristi Jones is a Paediatrician and Clinical Geneticist with an interest in genetic neuromuscular conditions who heads the clinical neuromuscular service at Children’s Hospital at Westmead.
Kristi graduated from The University of Sydney in 1990. Her post-graduate qualifications include: Fellowship of the Royal Australasian College of Physicians, Clinical Geneticist of the Human Genetics Society of Australasia (HGSA), and a Doctorate (PhD).
She also consults at Genea, seeing couples going through their preimplantation genetic diagnosis (PGD) program.
Kristi’s current research interests stem from her PhD, and focus on the clinical and genetic diagnosis of muscular dystrophies and therapeutic trials for genetic muscle disease. She heads the Clinical Trials Unit within the Institute for Neuroscience and Muscle Research at Childrens Hospital at Westmead.
She is a Clinical Associate Professor in the Discipline of Paediatrics and Child Health, Sydney Medical School, at the University of Sydney, lecturing and teaching in paediatrics and genetics.
Kristi is a member of the Human Genetics Society of Australasia, and the Australasian Association of Clinical Geneticists.
Martin Dalrymple Dip Fin Serv (Gen Bkg), Q.P.I.B.
Martin Dalrymple is Principal and Owner of Andrews Insurance Services Pty Ltd , currently President of NSW Push and Power Sports Inc, Vice President of Australian Powerchair Football Australia.
He is a long term member with MDNSW and has a son Peter who has Duchenne MD.
Martin is also a supporter of MDF National Electric Wheelchair Sports and is the elected National Umpires Coordinator for the 2013 games.
Shannon Finch, ANU BA (Hons) LLB (Hons), MAICD
Shannon Finch is a corporate partner of a major corporate law firm, King & Wood Mallesons (formerly Mallesons Stephen Jaques), where she is joint leader of the public mergers & acquisitions and capital markets team, and is the operational head of the Sydney office.
Shannon has been in corporate practice at King & Wood Mallesons for over 17 years, in the Canberra, London and Sydney offices, and prior to that time, worked with the Commonwealth Attorney-General’s department.
She is member of the Corporations Committee of the Law Council of Australia, and is a guest-lecturer on securities and disclosure laws at the University of Sydney, University of NSW and Monash University.
Kim Brislane has specialised in the Not for Profit sector for over 20 years honing her skills as the National CEO of The Duke of Edinburgh’s Award in Australia from 2007 – 2012. Kim has also worked with the Coca Cola Foundation, The Sydney Children’s Hospital Foundation, Odyssey House, The International Award for Young People as well as Flight Centre globally and Porsche. In 2011 Kim was one of three Not-for-Profit CEOs awarded a Harvard Business School scholarship held in Sydney. She sits on two other Boards focusing on Women’s Health and Legal Aid for the wider Blue Mountains and regional community and is an Ambassador of The Duke of Edinburgh’s Award in Australia.
Christina Liang MBBS, BSc(Med), FRACP
Christina is a staff specialist in neurology at Royal North Shore Hospital. She graduated from UNSW in 2002 and completed her training at Westmead and Royal North Shore Hospitals. She cares for adolescents and adults with various neuromuscular and neurogentic conditions through the Neuromuscular/ Transition and Neurogenetics Clinics. She is currently completing her doctoral studies in the management of adult patients with mitochondrial diseases, and is involved in international clinical trial and research.