MD associations around Australia fund a variety of research projects over a broad spectrum of leading areas of research. Grants are made following careful assessment by scientific advisory committees.
For many years substantial grant allocations have been made for important and cutting edge work some of which has led to important breakthroughs in treatment of neuromuscular disorders.
While continuing scientific and medical breakthroughs give us much hope and encouragement, it may be many years before a significant discovery or promising early trial eventually leads to safe and reliable treatments or cures.
To keep abreast of the latest developments in Australia and around the world you may find some of the links below useful.
Institute for Neuroscience and Muscle Research (NSW)
A selection of recent scientific articles and general news from INMR, located at the The Children’s Hospital at Westmead in Sydney. To find out more about INMR please click here.
Perron Institute for Neurological and Tranlational Science (formerly the Western Australian Neuroscience Research Institute (WANRI)
A selection of recent scientific articles and general news from ANRI, located on the Queen Elizabeth II Medical Centre site at Nedlands in Perth. To find out more about ANRI please click here.
Australian New Zealand Clinical Trials Registry
The ANZCTR is an on-line register of clinical trials being undertaken in Australia and New Zealand. Funded by the NHMRC, the ANZCTR aims to be a comprehensive and prospective national register. Select the “Trial Search” button and once you get through one or two survey pages you can search for clinical trials of interest, e.g. “muscular dystrophy” (including the quotes).
Muscular Dystrophy Campaign (UK)
A comprehensive, up-to-date and thoughtful site which provides news and information on research and clinical trials in the UK and around the world. Muscular Dystrophy Campaign is the major MD association in the UK.
Treat NMD (Europe)
TREAT-NMD is a European network which brings together people with neuromuscular diseases and specialists (scientists, healthcare professionals and pharmaceutical companies) working on treatments for these conditions. A particularly good reference site which highlights the serious efforts being made in Europe to research and develop treatments for NMDs and also provides much useful information.
Muscular Dystrophy Association (USA)
The research news page of Muscular Dystrophy Association USA with archives going back over a decade. A must to explore.
The muscular dystrophy page of Mediline Plus, published by the U.S. National Library of Medicine and the National Institutes of Health. A major reference site for information on all forms of muscular dystrophy, including diagnosis & symptoms, treatment, research, and further reference links.
Association Française contre les Myopathies (France)
The news page in English of the French Muscular Dystrophy Association (AFM). AFM is one of the largest and most active MD associations in the world. In 2008 it raised over €100 million through its annual national Telethon. These funds are used to research and develop treatments and therapies for muscular dystrophy.
Medical News Today USA
A commercial medical news web site with up-to-date news on research related to muscular dystrophy, amyotrophic lateral sclerosis (ALS), Lou Gehrig’s Disease and muscular atrophy.
A search of the BBC web site for news, information and stories related to muscular dystrophy.