Cynda Rushton Workshop
Attend the popular Disability and Carers’ Day on Friday 30th August 2013 from 10am to 9pm. Click here for details.
Reg and Kay Mclennan and their 14 year old grandson Joseph who has Muscular Dystrophy, organized a fundraising event at the Grafton District Golf Course. Mr and Mrs Mclennan hope the money raised from the event would improve the quality of life for those who suffer from this disease. The event was a huge success and approximately $3000 was raised! Click here for details.
TREAT - NMD organized meetings early this month that focused on treatments and support available for people’s lives who are affected by a neuromuscular condition. The COST Action meeting kicked off on 3rd April and focused on “Networking towards clinical application of antisense-mediated exon skipping”. On 18th-19th April 2013 the CARE-NMD International Conference took place and 140 delegates gathered together to discuss issues regarding “caring for people living with DMD”. Click here for more details.
First National Myositis Conference will be held in Adelaide, South Australia from 19th to 22nd August 2013. Click here to get more details from myositis.org.au
Jacob Lancaster and Elie Eid’s both have Duchenne muscular dystrophy. They are currently doing their best to help collect 300,000 signatures on a petition for the government to match the $1.76 million dollars already raised to finance clinical trials to stop muscle degeneration in Duchenne MD. Read about The Most Powerful Arm and sign the petition here.
The National Disability Insurance Scheme is now changed to ‘DisabilityCare Australia’. Click here for details.
A huge congratulations to our talented boys for an incredible achievement!!! 17 year old Daniel Michel was named Team Captain of the BC3 Australian Paralympic Boccia Squad, and 60 year old Dean Nottle was named Team Captain of the BC4 Squad plus National Captain of the entire Aussie Paralympic Boccia Squad! Well done!!!!
The Australian Paralympic Committee has welcomed the announcement that Sydney will host the 2013 Asia Oceania Boccia Championships!! Click here for more information.
Andrew Constance has announced a Specialist Group within the Department of Family and Community Services to enable NSW to work with the Australian Government on the successful launch of NDIS in the Hunter Region from July 2013. Click here for details.
Life can get pretty busy for the family but these three gorgeous children bring joy and happiness to the family and everyone around them. Click here for the Read family story