Neuromuscular Seminar And Research Update 2018

The seminar held at the Figtree Convention Centre on Saturday 10 November 2018. It was attended by a large audience and was enjoyed by all. You can watch all of the talks below.
Sam Bryen presented on ‘Making sense of splice variants in neuromuscular disorders’. Sam is the current MDNSW PhD Scholar.


Rachel Lindeback presented on ‘Food, Fabulous Food!’. Rachel is a Senior Paediatric Dietitian, Sydney Children’s Hospital.



Fabienne Edema-Hildebrand presented on ‘Transition Care, let’s make the transition to adult health care as smooth as possible’. Fabienne is a Clinical Nurse Specialist Neurology, Royal North Shore Hospital.



Dr Michelle Farrar presented on ‘Lesson learned from SMA – what happens when a clinical trial works!’. Michelle is a Paediatric Neurologist and Director of Neuromuscular Services, Sydney Children’s Hospital.



Helena Young presented on ‘NDIS – Challenges & opportunities for people with muscle diseases’. Helena is an Occupational Therapist – Neuromuscular Team, Children’s Hospital Westmead.



Julie Duong & Kristie McCarthy chaired a panel discussion on the topic of ‘How to get the best from your NDIS funding, and your chance to share your experiences of the NDIS’.