Fact Sheets

Approximately 1 in 1,000 people in NSW live with a neuromuscular condition, with approximately 7,500 affected in NSW alone.

To address some of the issues identified by people with neuromuscular conditions in getting appropriate and adequate funding in their NDIS plans, Muscular Dystrophy NSW has developed a series of plain English fact sheets on the most common conditions.


These fact sheets can be used as a basic training and education tool for people who are newly diagnosed, living with a neuromuscular condition or their families and carers. The sheets can also be used by others involved in their lives such as NDIS Local Area Coordinators, NDIA planners, therapists, service providers and support workers.


You will find these fact sheets useful in the NDIS planning process and can include a copy of the fact sheet with your planning information.


The fact sheets include:
• Information on conditions in plain English
• Information on how the condition can affect the person
• What supports typically assist a person to be independent and fully participate in community life
• Interpreter access information and helpful links


Becker Muscular Dystrophy


Charcot-Marie-Tooth Disease


Congenital Muscular Dystrophy


Congenital Myopathies


Duchenne Muscular Dystrophy


Facioscapulohumeral Muscular Dystrophy (FSHD)


Friedreich Ataxia


Idiopathic Inflammatory Myopathies


Inclusion Body Myositis


Limb Girdle Muscular Dystrophies


Myotonic Muscular Dystrophy


Spinal Muscular Atrophy Type 1


Spinal Muscular Atrophy Type 2, Type 3, Type 4


Hard copies of the fact sheets are available for members of MDNSW. Please contact us if you require copies:

Free call : 1800 635 109
Email :