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Neuromuscular Seminar And Research Update 2019

The seminar held at the Figtree Convention Centre on Saturday 31 August 2019. It was attended by a large audience and was enjoyed by all. You can watch all of the talks below.

 

Sam Bryen presented on ‘Taking control of splicing: New therapies for neuromuscular disorders’.
Sam is the current MDNSW PhD Scholar.

 

 

Clinical A/Prof. Alastair Corbett presented an ‘Update on Facioscapulohumeral Muscular Dystrophy & Myotonic Muscular Dystrophy’.

 

 

Shannon Finch presented ‘Understanding the Disability Royal Commission. 
Shannon is a M&A partner Jones Day law firm and Vice President of MDNSW.

 

 

A/Prof. Kristi Jones presented ‘What has been achieved through MDNSW Bequest program. 
Kristi is the Head of Dept Clinical Genetics CHW, Lead Neuromuscular Clinical Trials Unit, CHW and Medical Director of MDNSW.

 

 

David Quach presented “Home Automation & Home Modifications – investigating options to increase independence. 
David is an OT at Aspire Rehab.

 

 

Peter O’Keefe presented ‘Planning for the future – experiences as a grandparent’. 
Peter is the grandfather of Patrick who has myotonic dystrophy.

 

 

Carolyn Campbell-McLean, Joe Iaquinto and Chris Suffield a panel discussion on the topic of ‘Living the Life I Choose – a panel of people with lived experience of neuromuscular conditions’.