LATEST NEWS

A story this Christmas of two mates with MD that will make you smile : )

This Christmas, we’re sharing the story of two mates, Scott and Patrick, aka The Roll …

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Talking Point out now – November edition

The November edition of Talking Point is out now! Hear the latest news on: Peer …

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MDNSW receives $520,000 donation from the Golden Eagle charity race

A recap from MDNSW Board members, Nathan Teong & Tait Jenkins. “Well, what an amazing …

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PDCN Post-Traumatic Growth Workshop

The Physical Disability Council of NSW is hosting a brand new free Post-Traumatic Growth (PTG) …

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Wonderful Women Connect at the Women’s Retreat

Our first ever MDNSW Women’s Retreat (for women who live with a neuromuscular condition) was …

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Talking Point out now – October edition

The October edition of Talking Point is out now! Hear the latest news on: Peer …

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Team MD legends going the extra mile

Congratulations to the three Team MD runners participating in the Blackmores Sydney Running Festival last …

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Sugar Free September a SWEET Success!

This year’s Sugar Free September challenge has helped raise $206,736 for kids, adults and families …

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Register for small group workshops now

The Physical Disability Council of NSW are running FREE online and in-person workshops for people …

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Talking Point out now – September edition

The September edition of Talking Point is out now! Hear the latest news on: Peer …

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MD Makers gonna make!

18 people from our neuromuscular community gathered for MDNSW’s first Makers Day at the Dooleys …

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Exciting new partnership announcement – Welcome WeFlex

For people living with a muscle wasting condition like muscular dystrophy, going to the gym …

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Going sugar free is hard, but living with muscular dystrophy is much harder

Approximately 1 in 500 Australians live with an incurable genetic neuromuscular condition that progressively deteriorates …

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Talking Point – August Edition

The August edition of Talking Point is out now! Hear the latest news on: Peer …

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Changes to the MDNSW Board

Recently we said thank you and farewell to long serving MDNSW Board Directors, Dr Christina …

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Have your say in a national rare disease project

Did you know that an estimated 2 million Australians live with a rare disease? Despite …

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Sugar Free September registration is now open!

We have some SWEET and very exciting news for you… You can now officially sign …

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Talking Point – July Edition

The July edition of Talking Point is out now! Hear the latest news on: Peer …

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Plastic single-use straws – exemptions guidance

From 1 November 2022, the supply of plastic single-use straws will be banned in NSW. …

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Peers talk Independent Living and Support

Our June Info Share session was all about independent living and support. Ten peers joined …

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Talking Point – June Edition

The June edition of Talking Point is out now! Hear the latest news on: Peer …

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Connection, Community and Celebration at the Peer Connect Retreat

Written by Carolyn Campbell-McLean This years Peer Connect Retreat was held at the Rydges Hotel …

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Ask A Scientist – Get answers straight from the experts

The experts at the Kids Neuroscience Centre, part of the Sydney Children’s Hospital Network, are …

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FSHD Global Research Foundation’s “FSHD Medical Education Portal”

The FSHD Global Research Foundation focuses on finding treatments and a cure for FSHD. In …

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Talking Point – May Edition

The May edition of Talking Point is out now! Hear the latest news on: Peer …

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John’s first time at Adventure Camp

Our Adventure Camp was held in April, and for 7 year old John who lives …

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Join the MDNSW Team – OT position available!

Occupational Therapist – Physical Disability/Neuromuscular Specialist | $60 – $94.99 per hour |Casual This is …

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Medical Imaging and Women’s Health Services Survey Report

Last year, you may have participated in the Medical Imaging and Women’s Health Services Survey …

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Help us plan and provide for a neuromuscular community you deserve

It’s that time of year again, where we ask you – our neuromuscular community – …

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Talking Point – March Edition

The March edition of Talking Point is out now! Hear the latest news on: Peer …

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Latest Peer Connect Calendar out now!

Connections are important, especially in these times, so MDNSW is running a mix of online …

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NSW Multi-sport Come & Try Event

Paralympics Australia is excited to announce a series of national dates for Paralympics Australia Multi-Sport …

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MDNSW Members join the Coogee Surf Life Saving Team!

Last year we partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW …

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Come & Play Physical Disability Rugby League

The NSW Physical Disability Rugby League is seeking new players to join their inclusive game …

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Big Red Roll + Stroll – Registration Open!

The Big Red Roll + Stroll is an inclusive event for our whole community, aimed …

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Looking for something exciting to do? Check out Duke of Ed!

The Duke of Edinburgh Award is about challenging young people to find their purpose, passion …

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Survey results tell us – You love Peer Connect!

In November last year, we surveyed 120 people who participated in the online Peer Connect …

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Occupational Therapist – Physical Disability/Neuromuscular Specialist (Casual)

This is an exciting opportunity for an experienced Casual Occupational Therapist to provide essential support …

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2020-21 MDNSW Yearbook is here!

Your annual MDNSW Yearbook is here, providing a complete summary of the impact and highlights …

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MDNSW community member forced to spend $1300 on rapid antigen tests for in-home carers

Many in our MDNSW community would know Carolyn Campbell-McLean through the great work she does …

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Looking for a fun new sport this Summer? Give Boccia a go!

As you may be well aware, the Australian Boccia team did us proud at the …

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61st Annual General Meeting Announced

It’s that time of year again – it’s the MDNSW Annual General Meeting! We would …

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Come along to our ‘Fun in the Sun’ Community Day

We’re inviting all of our younger members and their families to join us for our …

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Watch our recorded Info Session with the NDIS Commission

On Thursday, 30 September, we had the lovely people at the NDIS Quality and Safeguards …

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COMMUNITY SURVEY – Help us return safely to face-to-face programs!

As we prepare to return to in-person services, the health and safety of our members …

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Boccia – The thinking person’s para sport

“The thinking person’s para sport” – this was the way the TV commentary team introduced …

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MDNSW PhD Scholar, Sam Bryen, completes her thesis

I work at the Kids Neuroscience Centre, part of Kids Research at the Children’s Hospital …

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Become a Surf Life Saving Club Patroller

We’ve partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW first online …

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Help kids with Muscular Dystrophy by simply going Sugar Free!

Approximately 1 in 1,000 Australians live with a genetic neuromuscular condition that progressively deteriorates their …

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A Bronze medal result for Daniel Michel in Tokyo!

He’s done it! A Bronze medal result for Daniel Michel in Tokyo!!! 🤩🥉🎉 Congratulations on …

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Talking Point Out Now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest community news and …

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Community Coalition Demands Immediate Action To Vaccinate People With Disability Against COVID-19

We are part of a coalition of more than 60 disability organisations which are calling …

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John finds his independence at Camp

Meet John… he is nine years old and lives with Congenital Myotonic Dystrophy. In April …

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Peers Show and Tell their best Assistive Technology

In late June, we held a Peer Connect Info Share Innovation Showcase online with 7 …

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Spring clean your health with Sugar Free September

With Spring less than one month away, don’t let your house get all the spring …

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We’re supporting the Australian Neuromuscular Disease Registry

The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a …

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Reports on NDIS participants with Sensory Disability and Neurodegenerative Conditions released

See below the Media Release from the NDIS, 1/7/21. We have released two deep dive …

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Covid-19 Update – Changes to programs and services

In accordance with the NSW Government’s lockdown in place for Greater Sydney, Wollongong, Shellharbour, Central …

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Respiratory equipment recall from Philips

Important information regarding equipment recall by Philips: “Philips voluntarily decided to issue a global recall …

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Peers Connect at Newcastle Retreat

On Friday 21 May, a group of 22 adults living with MD and their partners …

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Launch of the 2022 FIPFA Powerchair Football World Cup

The 2022 FIPFA Powerchair Football World Cup was launched at Parramatta’s Bankwest Stadium on Thursday …

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Registration for Summer Camp now open!

Summer Camp is being held from the 18-22 December and, after having to cancel last year’s …

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We need a treatment for adults with SMA

Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those …

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Book in now for the Peer Connect Retreat

We are holding this years Peer Connect Retreat for adults with a neuromuscular condition in …

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A Message from our Patron

Read the message of support for the Big Red Roll + Stroll from Her Excellency, …

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Parenting with MD Wrap Up

Last month a group of five parents with MD joined in for a fantastic 2-hour …

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Update on commencement of Covid-19 vaccine rollout

The Australian Government Department of Health (Department of Health) has issued information about the roll …

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Powerchair Football – An interview with Jaxon Taylor

With the 2021 Sydney powerchair football season set to kick off on Saturday 20th February, …

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Are you going Sugar Free this year?

Register your interest for Sugar Free September today! Have you ever thought about giving up …

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Register now for the Big Red Roll + Stroll

Whether you run, roll or stroll across the finish line, join us for a great …

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Are you ready for an adventure this April?

Our much anticipated Adventure Camp is making a come back this April school holidays and …

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NSW Powerchair football season about to start

The NSW Powerchair Football Association will be holding their pre-season ‘Come and Try’ days over …

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CARS trial a great success!

Throughout December, we ran our Community Access and Recreation Service (CARS) trial with members who expressed …

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We’re expanding our MDNSW team!

Position: Casual Support Workers (Sydney Metro – Lidcombe) We’ve recently trialled our new Community Access …

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Have fun and get out and about this school holidays with the CARS program!

Ready for fun and excitement this school holidays? Our new Community Access and Recreation Service …

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Your MDNSW 2019-20 Yearbook

To record and celebrate the achievements of our community, during what was a particularly challenging …

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Talking Point Out Now

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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CARS is on its way and you can be the first to experience it!

Are you ready for your next adventure? We can take you there! After receiving important …

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60th Annual General Meeting Announced

When:​ Tuesday, 24th November, 2020 commencing at 6.00pm. Where: Online Zoom Meeting Room CLICK HERE TO JOIN. …

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NIRD 2020 – A Great Success

We recently held our annual Neuromuscular Information and Research Day (NIRD), this year going virtual …

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Peers Connect to Build their Dream Team

Last month, our online Peer Connect – Info Share session discussed ‘Building Your Dream Team’. Kate …

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We’re excited to announce our partnership with Hireup!

We’ve been talking to the team at Hireup for months and we’re excited to partner …

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Neuromuscular Information & Research Day

A program with topics that matter most to you! The MDNSW Neuromuscular Research & Information …

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Peer Connect Info Share Meet Up

With the theme ‘Building Your Dream Team’, our next Peer Connect Info Share online meet …

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Bringing the voices that matter to the front

We’re so proud of our CEO Charlotte Sangster and all of her hard work for …

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Register now for Sugar free September

Sugar Free September is here, it’s not too late to register! Join over 2000 participants …

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Your experience living with a neuromuscular condition during COVID-19

What has been your experience living with a neuromuscular condition during COVID-19? We want to …

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George
Emergency COVID-19 Appeal

Right now, in this global pandemic of COVID-19, people with Muscular Dystrophy need your help …

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COVID-19 MDNSW Information Update

Given both the uncertainty and the rapidly changing nature of COVID-19 in Australia, Muscular Dystrophy NSW (MDNSW) has considered the steps we need to take to ensure the health and safety of our members.

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Talking Point – June 2020

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Bushfire Information & Support

The National Disability Insurance Scheme (NDIS) has released some useful information and resources for people …

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A Great Day for our Community!

We held our annual MDNSW Community Day on Saturday, 30 November, where over 100 members, …

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Camp made possible for Kamal

Vrrrooom! The engine roars, the wheels spin, the wind is in your hair and everyone’s …

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Christmas Gift Cards

Each year Muscular Dystrophy NSW empowers, connects and supports people with neuromuscular conditions and works …

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George gives powerchair football a spin

Meet George! George had his first experience of Power Wheel Chair sports when he was …

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A Surprise for Ryan

As you may be aware Ryan is off to the Asia-Pacific-Oceania Cup in October to …

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Treat NMD Newsletter

Read the Oct 2022 Treat NMD newsletter  

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