It’s that time of year again – it’s the MDNSW Annual General Meeting! We would
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We’re inviting all of our younger members and their families to join us for our
We have been monitoring the Covid-19 situation in Greater Sydney closely, and with vaccination rates
On Thursday, 30 September, we had the lovely people at the NDIS Quality and Safeguards
As we prepare to return to in-person services, the health and safety of our members
“The thinking person’s para sport” – this was the way the TV commentary team introduced
I work at the Kids Neuroscience Centre, part of Kids Research at the Children’s Hospital
We’ve partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW first online
Approximately 1 in 1,000 Australians live with a genetic neuromuscular condition that progressively deteriorates their
He’s done it! A Bronze medal result for Daniel Michel in Tokyo!!! 🤩🥉🎉 Congratulations on
Talking Point keeps members and supporters of MDNSW up-to-date with the latest community news and
We are part of a coalition of more than 60 disability organisations which are calling
Meet John… he is nine years old and lives with Congenital Myotonic Dystrophy. In April
In late June, we held a Peer Connect Info Share Innovation Showcase online with 7
With Spring less than one month away, don’t let your house get all the spring
The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a
See below the Media Release from the NDIS, 1/7/21. We have released two deep dive
In accordance with the NSW Government’s lockdown in place for Greater Sydney, Wollongong, Shellharbour, Central
Important information regarding equipment recall by Philips: “Philips voluntarily decided to issue a global recall
On Friday 21 May, a group of 22 adults living with MD and their partners
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information
The 2022 FIPFA Powerchair Football World Cup was launched at Parramatta’s Bankwest Stadium on Thursday
Summer Camp is being held from the 18-22 December and, after having to cancel last year’s
Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those
We are holding this years Peer Connect Retreat for adults with a neuromuscular condition in
Read the message of support for the Big Red Roll + Stroll from Her Excellency,
Last month a group of five parents with MD joined in for a fantastic 2-hour
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information
The Australian Government Department of Health (Department of Health) has issued information about the roll
With the 2021 Sydney powerchair football season set to kick off on Saturday 20th February,
Register your interest for Sugar Free September today! Have you ever thought about giving up
Whether you run, roll or stroll across the finish line, join us for a great
Our much anticipated Adventure Camp is making a come back this April school holidays and
The NSW Powerchair Football Association will be holding their pre-season ‘Come and Try’ days over
Throughout December, we ran our Community Access and Recreation Service (CARS) trial with members who expressed
Position: Casual Support Workers (Sydney Metro – Lidcombe) We’ve recently trialled our new Community Access
Ready for fun and excitement this school holidays? Our new Community Access and Recreation Service
To record and celebrate the achievements of our community, during what was a particularly challenging
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information
Are you ready for your next adventure? We can take you there! After receiving important
When: Tuesday, 24th November, 2020 commencing at 6.00pm. Where: Online Zoom Meeting Room CLICK HERE TO JOIN.
We recently held our annual Neuromuscular Information and Research Day (NIRD), this year going virtual
Last month, our online Peer Connect – Info Share session discussed ‘Building Your Dream Team’. Kate
We’ve been talking to the team at Hireup for months and we’re excited to partner
A program with topics that matter most to you! The MDNSW Neuromuscular Research & Information
With the theme ‘Building Your Dream Team’, our next Peer Connect Info Share online meet
We’re so proud of our CEO Charlotte Sangster and all of her hard work for
Sugar Free September is here, it’s not too late to register! Join over 2000 participants
What has been your experience living with a neuromuscular condition during COVID-19? We want to
Right now, in this global pandemic of COVID-19, people with Muscular Dystrophy need your help
Given both the uncertainty and the rapidly changing nature of COVID-19 in Australia, Muscular Dystrophy NSW (MDNSW) has considered the steps we need to take to ensure the health and safety of our members.
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information
The National Disability Insurance Scheme (NDIS) has released some useful information and resources for people
We held our annual MDNSW Community Day on Saturday, 30 November, where over 100 members,
Vrrrooom! The engine roars, the wheels spin, the wind is in your hair and everyone’s
Each year Muscular Dystrophy NSW empowers, connects and supports people with neuromuscular conditions and works
Meet George! George had his first experience of Power Wheel Chair sports when he was
As you may be aware Ryan is off to the Asia-Pacific-Oceania Cup in October to
