Muscular Dystrophy NSW’s Big Red Roll & Stroll on 10 May was our biggest fundraising …
LATEST NEWS
MEDIA RELEASE 8 April 2025 Muscular Dystrophy NSW (MDNSW), NSW’s leading not-for-profit organisation supporting people …
Our Annual Impact Report for 2023-2024 is available now! Read on to see all the …
Adventure Camp is a place where teamwork, challenges and fun come together in the great …
The July edition of Talking Point is out now! Hear the latest news on: Peer …
The June edition of Talking Point is out now! Hear the latest news on: Peer …
Our Young Adults Retreat offers young adults living with muscular dystrophy the opportunity to get …
Muscular Dystrophy NSW’s hosts its biggest fundraising event, Big Red Roll & Stroll 23 June …
Sand, surf and red and yellow flags are probably the first things that come to …
The May edition of Talking Point is out now! Hear the latest news on: Peer …
For 9-year-old client John, MDNSW have been integral in supporting him on his journey with …
In 2018, MDNSW awarded the Sue Connor Scholarship, a full-time postgraduate scholarship to qualified candidate …
Professor Kristi Jones was our very first PhD scholarship recipient back in 1996! Now as …
The April edition of Talking Point is out now! Hear the latest news on: Peer …
The March edition of Talking Point is out now! Hear the latest news on: Peer …
To view the terms and conditions, please read it here.
The February edition of Talking Point is out now! Hear the latest news on: Peer …
It’s nearly been 3 months since the release of The Disability Royal Commission Final …
The December edition of Talking Point is out now! Hear the latest news on: Peer …
Our Annual Impact Report for 2022-2023 is available now! Read on to see all the …
Last weekend, a group of 8 women living with NMCs and their support workers came …
The November edition of Talking Point is out now! Hear the latest news on: Peer …
The October edition of Talking Point is out now! Hear the latest news on: Peer …
Connections are important! Getting information, ideas, encouragement and support from your peers is so valuable! …
The September edition of Talking Point is out now! Hear the latest news on: Peer …
We have some SWEET and very exciting news for you… You can now officially sign …
The August edition of Talking Point is out now! Hear the latest news on: Peer …
The July edition of Talking Point is out now! Hear the latest news on: Peer …
We are thrilled to share some exciting news! Muscular Dystrophy NSW is making significant strides …
Over the weekend of 26 – 28 May a group of 20 people with NMCs …
Last month our Info Share topic was Life After School. The topic was inspired after …
The May edition of Talking Point is out now! Hear the latest news on: Peer …
Adventure Camp 2023 was held at the Tops Conference Centre, Stanwell Tops in the first …
The April edition of Talking Point is out now! Hear the latest news on: Peer …
On Sunday, 19 March, we held our annual Big Red Roll + Stroll event at …
The March edition of Talking Point is out now! Hear the latest news on: Peer …
This Sunday, 19th March, hundreds of people living with neuromuscular conditions, along with their families and …
We are excited to welcome Robert Fraser to his newly appointed leadership role as the …
On Tuesday, 7th March, we hosted our International Women’s Day High Tea at Waterview, Bicentennial …
The February edition of Talking Point is out now! Hear the latest news on: Peer …
The December edition of Talking Point is out now! Hear the latest news on: Peer …
On International Day of People with Disability (3 December) our awesome participants in the Peer …
On Saturday, 26th November, members of our neuromuscular community got together to celebrate the end …
As we approach the end of the year, it’s a great time to reflect on …
Sydney New Year’s Eve for everyone – one night, many ways to celebrate! Each year, …
This Christmas, we’re sharing the story of two mates, Scott and Patrick, aka The Roll …
The November edition of Talking Point is out now! Hear the latest news on: Peer …
A recap from MDNSW Board members, Nathan Teong & Tait Jenkins. “Well, what an amazing …
The Physical Disability Council of NSW is hosting a brand new free Post-Traumatic Growth (PTG) …
Our first ever MDNSW Women’s Retreat (for women who live with a neuromuscular condition) was …
The October edition of Talking Point is out now! Hear the latest news on: Peer …
Congratulations to the three Team MD runners participating in the Blackmores Sydney Running Festival last …
This year’s Sugar Free September challenge has helped raise $206,736 for kids, adults and families …
The Physical Disability Council of NSW are running FREE online and in-person workshops for people …
The September edition of Talking Point is out now! Hear the latest news on: Peer …
18 people from our neuromuscular community gathered for MDNSW’s first Makers Day at the Dooleys …
For people living with a muscle wasting condition like muscular dystrophy, going to the gym …
Approximately 1 in 500 Australians live with an incurable genetic neuromuscular condition that progressively deteriorates …
The August edition of Talking Point is out now! Hear the latest news on: Peer …
Recently we said thank you and farewell to long serving MDNSW Board Directors, Dr Christina …
Did you know that an estimated 2 million Australians live with a rare disease? Despite …
The July edition of Talking Point is out now! Hear the latest news on: Peer …
From 1 November 2022, the supply of plastic single-use straws will be banned in NSW. …
Our June Info Share session was all about independent living and support. Ten peers joined …
The June edition of Talking Point is out now! Hear the latest news on: Peer …
Written by Carolyn Campbell-McLean This years Peer Connect Retreat was held at the Rydges Hotel …
The experts at the Kids Neuroscience Centre, part of the Sydney Children’s Hospital Network, are …
The FSHD Global Research Foundation focuses on finding treatments and a cure for FSHD. In …
The May edition of Talking Point is out now! Hear the latest news on: Peer …
Our Adventure Camp was held in April, and for 7 year old John who lives …
Occupational Therapist – Physical Disability/Neuromuscular Specialist | $60 – $94.99 per hour |Casual This is …
Last year, you may have participated in the Medical Imaging and Women’s Health Services Survey …
It’s that time of year again, where we ask you – our neuromuscular community – …
The March edition of Talking Point is out now! Hear the latest news on: Peer …
Connections are important, especially in these times, so MDNSW is running a mix of online …
Paralympics Australia is excited to announce a series of national dates for Paralympics Australia Multi-Sport …
Last year we partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW …
The NSW Physical Disability Rugby League is seeking new players to join their inclusive game …
The Duke of Edinburgh Award is about challenging young people to find their purpose, passion …
In November last year, we surveyed 120 people who participated in the online Peer Connect …
This is an exciting opportunity for an experienced Casual Occupational Therapist to provide essential support …
Your annual MDNSW Yearbook is here, providing a complete summary of the impact and highlights …
Many in our MDNSW community would know Carolyn Campbell-McLean through the great work she does …
As you may be well aware, the Australian Boccia team did us proud at the …
It’s that time of year again – it’s the MDNSW Annual General Meeting! We would …
We’re inviting all of our younger members and their families to join us for our …
On Thursday, 30 September, we had the lovely people at the NDIS Quality and Safeguards …
As we prepare to return to in-person services, the health and safety of our members …
“The thinking person’s para sport” – this was the way the TV commentary team introduced …
I work at the Kids Neuroscience Centre, part of Kids Research at the Children’s Hospital …
We’ve partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW first online …
Approximately 1 in 1,000 Australians live with a genetic neuromuscular condition that progressively deteriorates their …
He’s done it! A Bronze medal result for Daniel Michel in Tokyo!!! 🤩🥉🎉 Congratulations on …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest community news and …
We are part of a coalition of more than 60 disability organisations which are calling …
Meet John… he is nine years old and lives with Congenital Myotonic Dystrophy. In April …
In late June, we held a Peer Connect Info Share Innovation Showcase online with 7 …
With Spring less than one month away, don’t let your house get all the spring …
The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a …
See below the Media Release from the NDIS, 1/7/21. We have released two deep dive …
In accordance with the NSW Government’s lockdown in place for Greater Sydney, Wollongong, Shellharbour, Central …
Important information regarding equipment recall by Philips: “Philips voluntarily decided to issue a global recall …
On Friday 21 May, a group of 22 adults living with MD and their partners …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
The 2022 FIPFA Powerchair Football World Cup was launched at Parramatta’s Bankwest Stadium on Thursday …
Summer Camp is being held from the 18-22 December and, after having to cancel last year’s …
Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those …
We are holding this years Peer Connect Retreat for adults with a neuromuscular condition in …
Read the message of support for the Big Red Roll + Stroll from Her Excellency, …
Last month a group of five parents with MD joined in for a fantastic 2-hour …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
The Australian Government Department of Health (Department of Health) has issued information about the roll …
With the 2021 Sydney powerchair football season set to kick off on Saturday 20th February, …
Register your interest for Sugar Free September today! Have you ever thought about giving up …
Whether you run, roll or stroll across the finish line, join us for a great …
Our much anticipated Adventure Camp is making a come back this April school holidays and …
The NSW Powerchair Football Association will be holding their pre-season ‘Come and Try’ days over …
Throughout December, we ran our Community Access and Recreation Service (CARS) trial with members who expressed …
Position: Casual Support Workers (Sydney Metro – Lidcombe) We’ve recently trialled our new Community Access …
Ready for fun and excitement this school holidays? Our new Community Access and Recreation Service …
To record and celebrate the achievements of our community, during what was a particularly challenging …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
Are you ready for your next adventure? We can take you there! After receiving important …
When: Tuesday, 24th November, 2020 commencing at 6.00pm. Where: Online Zoom Meeting Room CLICK HERE TO JOIN. …
We recently held our annual Neuromuscular Information and Research Day (NIRD), this year going virtual …
Last month, our online Peer Connect – Info Share session discussed ‘Building Your Dream Team’. Kate …
We’ve been talking to the team at Hireup for months and we’re excited to partner …
A program with topics that matter most to you! The MDNSW Neuromuscular Research & Information …
With the theme ‘Building Your Dream Team’, our next Peer Connect Info Share online meet …
We’re so proud of our CEO Charlotte Sangster and all of her hard work for …
Sugar Free September is here, it’s not too late to register! Join over 2000 participants …
What has been your experience living with a neuromuscular condition during COVID-19? We want to …
Right now, in this global pandemic of COVID-19, people with Muscular Dystrophy need your help …
Given both the uncertainty and the rapidly changing nature of COVID-19 in Australia, Muscular Dystrophy NSW (MDNSW) has considered the steps we need to take to ensure the health and safety of our members.
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
The National Disability Insurance Scheme (NDIS) has released some useful information and resources for people …
We held our annual MDNSW Community Day on Saturday, 30 November, where over 100 members, …
Vrrrooom! The engine roars, the wheels spin, the wind is in your hair and everyone’s …
Each year Muscular Dystrophy NSW empowers, connects and supports people with neuromuscular conditions and works …
Meet George! George had his first experience of Power Wheel Chair sports when he was …
As you may be aware Ryan is off to the Asia-Pacific-Oceania Cup in October to …
