Your annual MDNSW Yearbook is here, providing a complete summary of the impact and highlights …
LATEST NEWS
Many in our MDNSW community would know Carolyn Campbell-McLean through the great work she does …
As you may be well aware, the Australian Boccia team did us proud at the …
It’s that time of year again – it’s the MDNSW Annual General Meeting! We would …
We’re inviting all of our younger members and their families to join us for our …
On Thursday, 30 September, we had the lovely people at the NDIS Quality and Safeguards …
As we prepare to return to in-person services, the health and safety of our members …
“The thinking person’s para sport” – this was the way the TV commentary team introduced …
I work at the Kids Neuroscience Centre, part of Kids Research at the Children’s Hospital …
We’ve partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW first online …
Approximately 1 in 1,000 Australians live with a genetic neuromuscular condition that progressively deteriorates their …
He’s done it! A Bronze medal result for Daniel Michel in Tokyo!!! 🤩🥉🎉 Congratulations on …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest community news and …
We are part of a coalition of more than 60 disability organisations which are calling …
Meet John… he is nine years old and lives with Congenital Myotonic Dystrophy. In April …
In late June, we held a Peer Connect Info Share Innovation Showcase online with 7 …
With Spring less than one month away, don’t let your house get all the spring …
The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a …
See below the Media Release from the NDIS, 1/7/21. We have released two deep dive …
In accordance with the NSW Government’s lockdown in place for Greater Sydney, Wollongong, Shellharbour, Central …
Important information regarding equipment recall by Philips: “Philips voluntarily decided to issue a global recall …
On Friday 21 May, a group of 22 adults living with MD and their partners …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
The 2022 FIPFA Powerchair Football World Cup was launched at Parramatta’s Bankwest Stadium on Thursday …
Summer Camp is being held from the 18-22 December and, after having to cancel last year’s …
Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those …
We are holding this years Peer Connect Retreat for adults with a neuromuscular condition in …
Read the message of support for the Big Red Roll + Stroll from Her Excellency, …
Last month a group of five parents with MD joined in for a fantastic 2-hour …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
The Australian Government Department of Health (Department of Health) has issued information about the roll …
With the 2021 Sydney powerchair football season set to kick off on Saturday 20th February, …
Register your interest for Sugar Free September today! Have you ever thought about giving up …
Whether you run, roll or stroll across the finish line, join us for a great …
Our much anticipated Adventure Camp is making a come back this April school holidays and …
The NSW Powerchair Football Association will be holding their pre-season ‘Come and Try’ days over …
Throughout December, we ran our Community Access and Recreation Service (CARS) trial with members who expressed …
Position: Casual Support Workers (Sydney Metro – Lidcombe) We’ve recently trialled our new Community Access …
Ready for fun and excitement this school holidays? Our new Community Access and Recreation Service …
To record and celebrate the achievements of our community, during what was a particularly challenging …
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
Are you ready for your next adventure? We can take you there! After receiving important …
When: Tuesday, 24th November, 2020 commencing at 6.00pm. Where: Online Zoom Meeting Room CLICK HERE TO JOIN. …
We recently held our annual Neuromuscular Information and Research Day (NIRD), this year going virtual …
Last month, our online Peer Connect – Info Share session discussed ‘Building Your Dream Team’. Kate …
We’ve been talking to the team at Hireup for months and we’re excited to partner …
A program with topics that matter most to you! The MDNSW Neuromuscular Research & Information …
With the theme ‘Building Your Dream Team’, our next Peer Connect Info Share online meet …
We’re so proud of our CEO Charlotte Sangster and all of her hard work for …
Sugar Free September is here, it’s not too late to register! Join over 2000 participants …
What has been your experience living with a neuromuscular condition during COVID-19? We want to …
Right now, in this global pandemic of COVID-19, people with Muscular Dystrophy need your help …
Given both the uncertainty and the rapidly changing nature of COVID-19 in Australia, Muscular Dystrophy NSW (MDNSW) has considered the steps we need to take to ensure the health and safety of our members.
Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …
The National Disability Insurance Scheme (NDIS) has released some useful information and resources for people …
We held our annual MDNSW Community Day on Saturday, 30 November, where over 100 members, …
Vrrrooom! The engine roars, the wheels spin, the wind is in your hair and everyone’s …
Each year Muscular Dystrophy NSW empowers, connects and supports people with neuromuscular conditions and works …
Meet George! George had his first experience of Power Wheel Chair sports when he was …
As you may be aware Ryan is off to the Asia-Pacific-Oceania Cup in October to …
