LATEST NEWS

Interview with a Camper – Adventure Camp 2024

Adventure Camp is a place where teamwork, challenges and fun come together in the great …

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Talking Point out now – July edition

The July edition of Talking Point is out now! Hear the latest news on: Peer …

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Talking Point out now – June edition

The June edition of Talking Point is out now! Hear the latest news on: Peer …

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Young Adults Retreat May 2024 – A Recap

Our Young Adults Retreat offers young adults living with muscular dystrophy the opportunity to get …

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MDNSW Big Red Roll & Stroll Press Release

Muscular Dystrophy NSW’s hosts its biggest fundraising event, Big Red Roll & Stroll 23 June …

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Making Waves in the World of Surf Life Saving

Sand, surf and red and yellow flags are probably the first things that come to …

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Talking Point out now – May edition

The May edition of Talking Point is out now! Hear the latest news on: Peer …

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Big Red Roll Ambassador: Meet John

For 9-year-old client John, MDNSW have been integral in supporting him on his journey with …

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2018 PhD Scholarship Award Recipient: Samantha Bryen

In 2018, MDNSW awarded the Sue Connor Scholarship, a full-time postgraduate scholarship to qualified candidate …

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1996 PhD Scholarship Award Recipient: Clinical Professor Kristi Jones

Professor Kristi Jones was our very first PhD scholarship recipient back in 1996! Now as …

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Talking Point out now – April edition

The April edition of Talking Point is out now! Hear the latest news on: Peer …

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Talking Point out now – March edition

The March edition of Talking Point is out now! Hear the latest news on: Peer …

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Giveaway alert! 📢 Complete our 2024 Clients, Families & Friends Survey now!

To view the terms and conditions, please read it here.

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Talking Point out now – February edition

The February edition of Talking Point is out now! Hear the latest news on: Peer …

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The Disability Royal Commission Final Report

  It’s nearly been 3 months since the release of The Disability Royal Commission Final …

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Talking Point out now – December edition

The December edition of Talking Point is out now! Hear the latest news on: Peer …

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2022-23 MDNSW Annual Impact Report

Our Annual Impact Report for 2022-2023 is available now! Read on to see all the …

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Women Sparkle and Shine at the MDNSW Women’s Retreat

Last weekend, a group of 8 women living with NMCs and their support workers came …

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Talking Point out now – November edition

The November edition of Talking Point is out now! Hear the latest news on: Peer …

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Talking Point out now – October edition

The October edition of Talking Point is out now! Hear the latest news on: Peer …

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Latest Peer Connect Calendar out now!

Connections are important! Getting information, ideas, encouragement and support from your peers is so valuable! …

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Talking Point out now – September edition

The September edition of Talking Point is out now! Hear the latest news on: Peer …

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Sugar Free September registration is now open!

We have some SWEET and very exciting news for you… You can now officially sign …

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Talking Point out now – August edition

The August edition of Talking Point is out now! Hear the latest news on: Peer …

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Talking Point out now – July edition

The July edition of Talking Point is out now! Hear the latest news on: Peer …

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Expanding Our Team for a Sustainable Future under NDIS!

We are thrilled to share some exciting news!  Muscular Dystrophy NSW is making significant strides …

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Peer Connect Retreat heads to Parramatta

Over the weekend of 26 – 28 May a group of 20 people with NMCs …

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Life After School Info Share Session

Last month our Info Share topic was Life After School. The topic was inspired after …

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Talking Point out now – May edition

The May edition of Talking Point is out now! Hear the latest news on: Peer …

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Adventure Camp Wrap Up

Adventure Camp 2023 was held at the Tops Conference Centre, Stanwell Tops in the first …

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Talking Point out now – April edition

The April edition of Talking Point is out now! Hear the latest news on: Peer …

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The Big Red Roll + Stroll – a BIG success!

On Sunday, 19 March, we held our annual Big Red Roll + Stroll event at …

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Talking Point out now – March edition

The March edition of Talking Point is out now! Hear the latest news on: Peer …

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https://www.team-md.org.au/event/big-red-roll-stroll-2023/home
Hundreds to gather at Parramatta Park to raise awareness for rare genetic disorder effecting 13,000 people in NSW

This Sunday, 19th March, hundreds of people living with neuromuscular conditions, along with their families and …

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MDNSW appoints new President, Robert Fraser, to the Board

We are excited to welcome Robert Fraser to his newly appointed leadership role as the …

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Celebrating the wonderful women in our MD community for International Women’s Day

On Tuesday, 7th March, we hosted our International Women’s Day High Tea at Waterview, Bicentennial …

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Talking Point out now – February edition

The February edition of Talking Point is out now! Hear the latest news on: Peer …

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Talking Point out now – December edition

The December edition of Talking Point is out now! Hear the latest news on: Peer …

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Peer of the Year Award recipients recognised

On International Day of People with Disability (3 December) our awesome participants in the Peer …

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Celebration and smiles at our AGM and Community Day!

On Saturday, 26th November, members of our neuromuscular community got together to celebrate the end …

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2021-22 MDNSW Annual Impact Report

As we approach the end of the year, it’s a great time to reflect on …

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Accessibility for Sydney New Year’s Eve

Sydney New Year’s Eve for everyone – one night, many ways to celebrate! Each year, …

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A story this Christmas of two mates with MD that will make you smile : )

This Christmas, we’re sharing the story of two mates, Scott and Patrick, aka The Roll …

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Talking Point out now – November edition

The November edition of Talking Point is out now! Hear the latest news on: Peer …

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MDNSW receives $520,000 donation from the Golden Eagle charity race

A recap from MDNSW Board members, Nathan Teong & Tait Jenkins. “Well, what an amazing …

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PDCN Post-Traumatic Growth Workshop

The Physical Disability Council of NSW is hosting a brand new free Post-Traumatic Growth (PTG) …

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Wonderful Women Connect at the Women’s Retreat

Our first ever MDNSW Women’s Retreat (for women who live with a neuromuscular condition) was …

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Talking Point out now – October edition

The October edition of Talking Point is out now! Hear the latest news on: Peer …

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Team MD legends going the extra mile

Congratulations to the three Team MD runners participating in the Blackmores Sydney Running Festival last …

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Sugar Free September a SWEET Success!

This year’s Sugar Free September challenge has helped raise $206,736 for kids, adults and families …

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Register for small group workshops now

The Physical Disability Council of NSW are running FREE online and in-person workshops for people …

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Talking Point out now – September edition

The September edition of Talking Point is out now! Hear the latest news on: Peer …

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MD Makers gonna make!

18 people from our neuromuscular community gathered for MDNSW’s first Makers Day at the Dooleys …

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Exciting new partnership announcement – Welcome WeFlex

For people living with a muscle wasting condition like muscular dystrophy, going to the gym …

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Going sugar free is hard, but living with muscular dystrophy is much harder

Approximately 1 in 500 Australians live with an incurable genetic neuromuscular condition that progressively deteriorates …

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Talking Point – August Edition

The August edition of Talking Point is out now! Hear the latest news on: Peer …

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Changes to the MDNSW Board

Recently we said thank you and farewell to long serving MDNSW Board Directors, Dr Christina …

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Have your say in a national rare disease project

Did you know that an estimated 2 million Australians live with a rare disease? Despite …

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Talking Point – July Edition

The July edition of Talking Point is out now! Hear the latest news on: Peer …

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Plastic single-use straws – exemptions guidance

From 1 November 2022, the supply of plastic single-use straws will be banned in NSW. …

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Peers talk Independent Living and Support

Our June Info Share session was all about independent living and support. Ten peers joined …

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Talking Point – June Edition

The June edition of Talking Point is out now! Hear the latest news on: Peer …

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Connection, Community and Celebration at the Peer Connect Retreat

Written by Carolyn Campbell-McLean This years Peer Connect Retreat was held at the Rydges Hotel …

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Ask A Scientist – Get answers straight from the experts

The experts at the Kids Neuroscience Centre, part of the Sydney Children’s Hospital Network, are …

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FSHD Global Research Foundation’s “FSHD Medical Education Portal”

The FSHD Global Research Foundation focuses on finding treatments and a cure for FSHD. In …

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Talking Point – May Edition

The May edition of Talking Point is out now! Hear the latest news on: Peer …

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John’s first time at Adventure Camp

Our Adventure Camp was held in April, and for 7 year old John who lives …

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Join the MDNSW Team – OT position available!

Occupational Therapist – Physical Disability/Neuromuscular Specialist | $60 – $94.99 per hour |Casual This is …

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Medical Imaging and Women’s Health Services Survey Report

Last year, you may have participated in the Medical Imaging and Women’s Health Services Survey …

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Help us plan and provide for a neuromuscular community you deserve

It’s that time of year again, where we ask you – our neuromuscular community – …

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Talking Point – March Edition

The March edition of Talking Point is out now! Hear the latest news on: Peer …

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Latest Peer Connect Calendar out now!

Connections are important, especially in these times, so MDNSW is running a mix of online …

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NSW Multi-sport Come & Try Event

Paralympics Australia is excited to announce a series of national dates for Paralympics Australia Multi-Sport …

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MDNSW Members join the Coogee Surf Life Saving Team!

Last year we partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW …

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Come & Play Physical Disability Rugby League

The NSW Physical Disability Rugby League is seeking new players to join their inclusive game …

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Looking for something exciting to do? Check out Duke of Ed!

The Duke of Edinburgh Award is about challenging young people to find their purpose, passion …

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Survey results tell us – You love Peer Connect!

In November last year, we surveyed 120 people who participated in the online Peer Connect …

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Occupational Therapist – Physical Disability/Neuromuscular Specialist (Casual)

This is an exciting opportunity for an experienced Casual Occupational Therapist to provide essential support …

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2020-21 MDNSW Yearbook is here!

Your annual MDNSW Yearbook is here, providing a complete summary of the impact and highlights …

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MDNSW community member forced to spend $1300 on rapid antigen tests for in-home carers

Many in our MDNSW community would know Carolyn Campbell-McLean through the great work she does …

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Looking for a fun new sport this Summer? Give Boccia a go!

As you may be well aware, the Australian Boccia team did us proud at the …

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61st Annual General Meeting Announced

It’s that time of year again – it’s the MDNSW Annual General Meeting! We would …

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Come along to our ‘Fun in the Sun’ Community Day

We’re inviting all of our younger members and their families to join us for our …

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Watch our recorded Info Session with the NDIS Commission

On Thursday, 30 September, we had the lovely people at the NDIS Quality and Safeguards …

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COMMUNITY SURVEY – Help us return safely to face-to-face programs!

As we prepare to return to in-person services, the health and safety of our members …

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Boccia – The thinking person’s para sport

“The thinking person’s para sport” – this was the way the TV commentary team introduced …

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MDNSW PhD Scholar, Sam Bryen, completes her thesis

I work at the Kids Neuroscience Centre, part of Kids Research at the Children’s Hospital …

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Become a Surf Life Saving Club Patroller

We’ve partnered with Coogee Surf Life Saving Club (Coogee SLSC) for a NSW first online …

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Help kids with Muscular Dystrophy by simply going Sugar Free!

Approximately 1 in 1,000 Australians live with a genetic neuromuscular condition that progressively deteriorates their …

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A Bronze medal result for Daniel Michel in Tokyo!

He’s done it! A Bronze medal result for Daniel Michel in Tokyo!!! 🤩🥉🎉 Congratulations on …

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Talking Point Out Now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest community news and …

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Community Coalition Demands Immediate Action To Vaccinate People With Disability Against COVID-19

We are part of a coalition of more than 60 disability organisations which are calling …

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John finds his independence at Camp

Meet John… he is nine years old and lives with Congenital Myotonic Dystrophy. In April …

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Peers Show and Tell their best Assistive Technology

In late June, we held a Peer Connect Info Share Innovation Showcase online with 7 …

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Spring clean your health with Sugar Free September

With Spring less than one month away, don’t let your house get all the spring …

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We’re supporting the Australian Neuromuscular Disease Registry

The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a …

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Reports on NDIS participants with Sensory Disability and Neurodegenerative Conditions released

See below the Media Release from the NDIS, 1/7/21. We have released two deep dive …

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Covid-19 Update – Changes to programs and services

In accordance with the NSW Government’s lockdown in place for Greater Sydney, Wollongong, Shellharbour, Central …

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Respiratory equipment recall from Philips

Important information regarding equipment recall by Philips: “Philips voluntarily decided to issue a global recall …

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Peers Connect at Newcastle Retreat

On Friday 21 May, a group of 22 adults living with MD and their partners …

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Launch of the 2022 FIPFA Powerchair Football World Cup

The 2022 FIPFA Powerchair Football World Cup was launched at Parramatta’s Bankwest Stadium on Thursday …

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Registration for Summer Camp now open!

Summer Camp is being held from the 18-22 December and, after having to cancel last year’s …

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We need a treatment for adults with SMA

Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those …

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Book in now for the Peer Connect Retreat

We are holding this years Peer Connect Retreat for adults with a neuromuscular condition in …

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A Message from our Patron

Read the message of support for the Big Red Roll + Stroll from Her Excellency, …

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Parenting with MD Wrap Up

Last month a group of five parents with MD joined in for a fantastic 2-hour …

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Talking Point out now!

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Update on commencement of Covid-19 vaccine rollout

The Australian Government Department of Health (Department of Health) has issued information about the roll …

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Powerchair Football – An interview with Jaxon Taylor

With the 2021 Sydney powerchair football season set to kick off on Saturday 20th February, …

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Are you going Sugar Free this year?

Register your interest for Sugar Free September today! Have you ever thought about giving up …

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Register now for the Big Red Roll + Stroll

Whether you run, roll or stroll across the finish line, join us for a great …

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Are you ready for an adventure this April?

Our much anticipated Adventure Camp is making a come back this April school holidays and …

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NSW Powerchair football season about to start

The NSW Powerchair Football Association will be holding their pre-season ‘Come and Try’ days over …

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CARS trial a great success!

Throughout December, we ran our Community Access and Recreation Service (CARS) trial with members who expressed …

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We’re expanding our MDNSW team!

Position: Casual Support Workers (Sydney Metro – Lidcombe) We’ve recently trialled our new Community Access …

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Have fun and get out and about this school holidays with the CARS program!

Ready for fun and excitement this school holidays? Our new Community Access and Recreation Service …

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Your MDNSW 2019-20 Yearbook

To record and celebrate the achievements of our community, during what was a particularly challenging …

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Talking Point Out Now

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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CARS is on its way and you can be the first to experience it!

Are you ready for your next adventure? We can take you there! After receiving important …

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60th Annual General Meeting Announced

When:​ Tuesday, 24th November, 2020 commencing at 6.00pm. Where: Online Zoom Meeting Room CLICK HERE TO JOIN. …

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NIRD 2020 – A Great Success

We recently held our annual Neuromuscular Information and Research Day (NIRD), this year going virtual …

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Peers Connect to Build their Dream Team

Last month, our online Peer Connect – Info Share session discussed ‘Building Your Dream Team’. Kate …

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We’re excited to announce our partnership with Hireup!

We’ve been talking to the team at Hireup for months and we’re excited to partner …

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Neuromuscular Information & Research Day

A program with topics that matter most to you! The MDNSW Neuromuscular Research & Information …

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Peer Connect Info Share Meet Up

With the theme ‘Building Your Dream Team’, our next Peer Connect Info Share online meet …

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Bringing the voices that matter to the front

We’re so proud of our CEO Charlotte Sangster and all of her hard work for …

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Register now for Sugar free September

Sugar Free September is here, it’s not too late to register! Join over 2000 participants …

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Your experience living with a neuromuscular condition during COVID-19

What has been your experience living with a neuromuscular condition during COVID-19? We want to …

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George
Emergency COVID-19 Appeal

Right now, in this global pandemic of COVID-19, people with Muscular Dystrophy need your help …

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COVID-19 MDNSW Information Update

Given both the uncertainty and the rapidly changing nature of COVID-19 in Australia, Muscular Dystrophy NSW (MDNSW) has considered the steps we need to take to ensure the health and safety of our members.

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Talking Point – June 2020

Talking Point keeps members and supporters of MDNSW up-to-date with the latest research and information …

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Bushfire Information & Support

The National Disability Insurance Scheme (NDIS) has released some useful information and resources for people …

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A Great Day for our Community!

We held our annual MDNSW Community Day on Saturday, 30 November, where over 100 members, …

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Camp made possible for Kamal

Vrrrooom! The engine roars, the wheels spin, the wind is in your hair and everyone’s …

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Christmas Gift Cards

Each year Muscular Dystrophy NSW empowers, connects and supports people with neuromuscular conditions and works …

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George gives powerchair football a spin

Meet George! George had his first experience of Power Wheel Chair sports when he was …

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A Surprise for Ryan

As you may be aware Ryan is off to the Asia-Pacific-Oceania Cup in October to …

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Treat NMD Newsletter

Read the Oct 2023 Treat NMD newsletter  

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