NIRD 2020 – A Great Success

We recently held our annual Neuromuscular Information and Research Day (NIRD), this year going virtual and hosting the event on Zoom. This enabled us to open the event up to almost 70 people from far and wide, some even from interstate!

Associate Prof Michelle Farrar kicked off the day with her down to earth approach to gene therapy, followed by our MDNSW PhD scholar Sam Bryden with an insight into her laboratories work in diagnosing rare conditions.

The breakout sessions covered FSHD, SMA and Duchenne, as well as transition to adult healthcare and parenting with MD. It was great to have such informative speakers, both medical professionals and people with valuable lived experience to share.

One of the highlights of the day was the Lived Experience panel which led to some thoughtful conversations about empowerment and independence for people with neuromuscular conditions.
We’d love to hear your feedback on our short survey, before 30 October.


The recordings of each session are available to watch back.


Huge thanks to everyone involved in making this event so successful!