…due to the spike in cases. “But the cost to Campbell-McLean just to keep herself safe is perhaps neatly summed up in that figure of $1,300. “I’ve spent $1,300 of…

…undiagnosed families. Specifically, I studied genetic variants that disrupt the cellular process of pre-mRNA splicing, or “splicing variants” for short. Splicing variants are often missed by the standard genetic tests…

…Carly Finlay reviews US YouTube sensation Shane Burcaw’s autobiographical, humorous read about his life with SMA. http://carlyfindlay.com.au/2019/07/20/book-review-strangers-think-my-girlfriend-is-my-nurse-by-shane-burcaw/ Read more from Carly Findlay Check out Shane and fiancé Hannah’s YouTube Channel…

…share experiences and information, and connect with others who face similar challenges. Date: Tuesday 5th September 2023 Time: 7:30pm – 9pm Please RSVP to Carolyn on carolyn.cm@mdnsw.org.au or 0408472510 to…

…welcome! The session will be held on Thursday, 28 Sep 2023 at 7pm – 9pm. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510….

Read the Oct 2023 Treat NMD newsletter  …

…The session will be held on Tuesday, 10 Oct 2023 at 11am – 12.30pm. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510.  …

…is $100/pp or $150/couple. Or if attending the dinner only, it’s $30/pp. Unfortunately, this Peer Connect Retreat is full, but we are taking a waiting list and hope to hold…

…who face similar challenges. Date: Tuesday, 7 Nov 2023 Time: 7:30 – 9pm Please RSVP to Carolyn on carolyn.cm@mdnsw.org.au or call on 0408 472 510. If you need any assistance…

…their faces. After the five days it was time to head home, for some campers this was terrible news, why can’t camp last forever?! They were sad to say goodbye…

…you would like to join, contact Jenny on 02 9888 5711 ext 3 or email jenny.smith@mdnsw.org.au. Jenny will send you the Zoom details. We look forward to seeing you there!…

…our flyer, click here. To register or find out more information, please contact Mitch at mitch.taylor@mdnsw.org.au or on 02 8986 9004, or Jenny at jenny.smith@mdnsw.org.au or on 0431 690 629….

…more about Young Adults Weekend here. The next “Lads Weekend” will be held from Friday 17th – Monday 20th February 2023 in Swansea. Please RSVP to Mitch Taylor at Mitch.taylor@mdnsw.org.au….

…at www.team-md.org.au/raise-it for more info or contact us directly on fundraising@mdnsw.org.au. The next big fitness challenge is the Ultra-Trail Kosciuszko happening from 15-17 Dec 2022. Click here to learn more!…