…see Lady Liberty up close, travel under the Brooklyn Bridge and see a different perspective of this incredible city from the water, all set to fascinating and witty commentary by…
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The Big Apple of My Eye – NYC – Part 2
The Big Apple of My Eye – NYC – Part 1
…worried my chair had been broken or left in San Francisco…..but thankfully it was just slow to come out. Then we were told it would be a 3 hour wait…
Read MoreNeuromuscular Information & Research Day 2024
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Transport Options, Concessions and Entitlements
…Community Transport Community Transport provides transportation for a nominal fee where other transport methods are not viable. To find your local community transport call: 1300 679 286 Community Transport Organisation…
Read MoreDiagnosis
…Father’s Memoir Publisher: Ginninderra Press, Port Adelaide, 2020 It is available as a paperback, from the Store on the publisher’s website: www.ginninderrapress.com.au It is also available on as an e-book…
Read MoreAsk A Scientist – Get answers straight from the experts
The experts at the Kids Neuroscience Centre, part of the Sydney Children’s Hospital Network, are giving the neuromuscular community the chance to submit their medical questions directly to their team…
Read MoreCome & Play Physical Disability Rugby League
…Week try out day, this Sunday 27th March, 2022 at New Era Stadium, Cabramatta Rugby League Club. Download the flyer or visit www.nswpdrla.com.au to learn more and register today 🏉…
Read MoreMDF Australia
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Accessing Sex Worker Resources
…suitable, they make a booking. TOUCHING BASE CONTACT DETAILS www.touchingbase.org 0424 591 409 info@touchingbase.org Content contributed by Touching Base. Source: IDEAS July – August 2019 Newsletter IDEAS website: www.ideas.org.au …
Read MoreHelp us plan and provide for a neuromuscular community you deserve
…on Friday 6 May 2022. Should you choose to leave your details upon completing the survey, you’ll go in the draw to win $100 gift card! Woohoo! COMPLETE THE SURVEY…
Read MorePeer Connect Retreat
This retreat is your chance to get away and connect with other adults with neuromuscular conditions. Partners are also welcome. Rydges Newcastle is conveniently located in the heart of Newcastle’s…
Read MoreSurviving Covid-19 when you live with SMA
…my care with N95 masks and gloves (mainly the ones who have had Covid themselves). Glen 20 and Dettol everywhere!!! Support workers help me with manual cough assist. (compression on…
Read MoreSurvey results tell us – You love Peer Connect!
…and problem solving Feeling connected and less alone Social contact / fun especially during the pandemic Skills building, leadership development and opportunity to be influential in the community “I like…
Read MoreMy journey to parenthood
…spoke about it some more. Chrissie made me feel comfortable and secure enough to really believe my dream of a family could actually come true. She encouraged me to never…
Read MoreChristmas Gift Cards
Each year Muscular Dystrophy NSW empowers, connects and supports people with neuromuscular conditions and works to be an effective advocate for the neuromuscular community This Christmas, we ask you to…
Read MoreWomen’s Retreat
…472 510 by Thursday 31 August 2023. Keeping our community safe: Please do not attend the event if you or any member of your family are unwell. We encourage RAT…
Read MoreStarting In A Mainstream High School: MD Style!
…communicating. Communication skills are a good thing to practice, and can make it easier when it comes to finding things in common with fellow classmates. I have ended up getting…
Read MoreThe country life for me
…now work as an Area Manger for quite a large catering company. I got this job as I completed an apprenticeship as a chef and over the years got a…
Read MoreLinks to Research & Resources
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2018 PhD Scholarship Award Recipient: Samantha Bryen
…rare neuromuscular disorders.” Samantha commenced her scholarship in July 2018 and completed it in September 2021. We recently had the opportunity to sit down with Sam to discuss the incredible…
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