…families’ lives at risk. But what can I do?” And with seven different carers coming into her home each week, Ms Robertson faces a heightened risk of catching COVID-19, which…
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Omicron wreaks havoc on NSW’s vulnerable
Living with Dermatomyositis
…shoes. I was finally diagnosed after my uncle saw me at my cousin’s wedding. He is a dermatologist and he noticed the red stripes on my knuckles even in the…
Read MoreMovies & TV Featuring people with MD (and similar disabilities)
…Disability Visibility http://disabilityhorizons.com/2018/05/what-do-you-think-of-how-people-with-disabilities-are-portrayed-in-films-and-on-tv/ https://iris.peabody.vanderbilt.edu/resources/films/ Disabled Actors in Film / Hollywood There is a wealth of talented disabled actors, but all too frequently they are overlooked, even when it comes to…
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Info and Resources on Sexuality and Relationships
…American comedy drama series, a coming of age story that follows Sam, an 18-year-old on the autistic spectrum as he searches for love and independence The Fundamentals of Caring –…
Read MoreMDNSW Big Red Roll & Stroll Press Release
…support families living with these conditions. Since 2020, the event has collectively raised over $224,971, with over 500 passionate community participants. There are currently 40,000 people living with a neuromuscular…
Read MoreTeam Connor – How we parent our child with Myotonic Muscular Dystrophy
…close by this takes a toll on Pete and my work commitments. We have a very busy schedule with Connor’s appointments and therapies and this, at times, has meant less…
Read MoreAs a disabled person trying to ‘live with’ Covid in Australia, every day is a game of figuring out who is least likely to kill me
…trying to, but you’re not making it easy,’ writes Dr George Taleporos. Photograph: Marnie Griffiths/Getty Images I’m the disabled guy on several committees, advising governments what to do to keep…
Read MoreDiagnosis
…mistake? (Now, many years later, those few minutes just before the announcement that changed everything have also stayed with me. I understand that trauma etches itself into the brain; but…
Read MoreHelp kids with Muscular Dystrophy by simply going Sugar Free!
…different stages of their lives, from birth to adulthood. This condition is something that five-year-old George knows far too much about, as he’s been living with it since he was…
Read MoreWhy I don’t want you to feel sorry for my child
…featured on various platforms, including Scary Mommy, Thrive Global, Medium and SBS Radio. Her blog inspiringlifedreams.com is also the winner of the Infinity Best Parenting Blog of 2019 Award. www.inspiringlifedreams.com…
Read MoreJunior Powerchair Soccer: Roll and Goal!
…encourage you to come check out powerchair soccer. Our new season starts in May 2019 and we would love to see you there! Get involved with Powerchair soccer! https://www.facebook.com/NSWPFA/ https://footballnsw.com.au/players/football4all/…
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COVID-19 MDNSW Information Update
…www.carersnsw.org.au 1800 242 636 As a community now is the time for us to band together and support one another. We appreciate your understanding and compassion during this challenging time….
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The Big Apple of My Eye – NYC – Part 2
…was a problem!! There’s nothing like jazz in Central Park Made it to Times Square for some photo opportunities. The sheer chaos of the advertising, people everywhere, traffic – a…
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Emergency COVID-19 Appeal
…types of complex, progressive Neuromuscular Conditions (NMCs) that affect 1 in every 1000 Australians. People living with neuromuscular conditions are one of the most vulnerable groups in our community during…
Read MoreHalloween Party
Join your peers at our online Halloween Party. Trivia and games, spooky stories, wear your scary costumes and pop up a creepy Zoom background. Lucky Door, Trivia and Best Dressed…
Read MorePeer Connect ‘Spooky Trivia’ Family Fun Night
…Prizes for Lucky Ticket, Best Dressed and Trivia winners! All members, clients, families, and staff welcome Connect with friends and other families and enjoy yourselves, it’s a guarantee! And even…
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