…kids and adults living with neuromuscular conditions so they can live their best lives,” Ms Sangster concluded. Visit www.sugarfreeseptember.org.au for more information. Media Contact: Alicia Ballesty m) 0419045240 e) alicia.ballesty@mdnsw.org.au…

…our community. We encourage all MDNSW members living with a neuromuscular condition to find out more by visiting the website and to register your interest. Find out more at www.australiannmdregistry.org.au…

…Australia has collected resources for people with disability and disability service providers on important COVID-19 information. Visit their website for new information and resources as they become available at www.pwd.org.au/covid-19-hub….

…types of complex, progressive Neuromuscular Conditions (NMCs) that affect 1 in every 1000 Australians. People living with neuromuscular conditions are one of the most vulnerable groups in our community during…

…make it possible for people with high support needs to live independently if they choose to. Accommodation options are limited at the moment, but growing. Read the story here: www.abc.net.au/news/2020-07-15/new-disability-housing-giving-people-more-options…

…with common symptoms being loss of muscle strength and function, loss of mobility, pain and fatigue. To promote this year’s campaign, MDNSW has rallied ambassadors from within the neuromuscular community,…

…MD in NSW? Why not do something nice for your health whilst supporting our MD community? So, sign up at www.sugarfreeseptember.org.au and get ready to kick sugar’s butt this September!…

…is why events like this are so special. When we unite, we develop friendships, comradery, support and strength. To feel like you’re not alone, and part of a community that…

…and for raising awareness and vital funds for the Muscular Dystrophy NSW community! The 2022 Blackmores Sydney Running Festival is an iconic event with a spectacular course that includes a…

…they are encouraging the neuromuscular community to join the FSHD Global registry, to enable them to connect people living with FSHD to medical research institutions and biotechs researching and/or recruiting…

…a tribe of others who knew exactly what we were going through. The community are so generous, not only with their advice but in their actions, with one family even…

…needed by the community wanting access to treatment. Consumer comments are open till the 26th May at the Department of Health website. Even if you have submitted before or would…