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A Great Day for our Community!

We held our annual MDNSW Community Day on Saturday, 30 November, where over 100 members, staff and Board got together to catch up, have fun and celebrate the end of…

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The Big Red Roll & Stroll

The Big Red Roll & Stroll is MDNSW flagship fundraising event, aimed at providing people living with a neuromuscular condition the chance to celebrate who they are with their family…

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Northern NSW Mums’ Retreat (CANCELLED)

Please note, due to low registration numbers we have had to cancel this program. Our apologies! We all know that we need to take care of ourselves so that we…

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“Iso reading” book review

Awesome Australian disability advocate Carly Finlay reviews US YouTube sensation Shane Burcaw’s autobiographical, humorous read about his life with SMA. http://carlyfindlay.com.au/2019/07/20/book-review-strangers-think-my-girlfriend-is-my-nurse-by-shane-burcaw/ Read more from Carly Findlay Check out Shane and…

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NSW Powerchair football season about to start

…premier league and reserve grade season, download and complete the registration form below and email it to Chris Suffield at christopher.suffield@hotmail.com no later than 13th February 2021. NSWPFA Registration Form…

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Living with Dermatomyositis

Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children and three dogs. Career wise, I’ve worked in Marketing Communications and I’ve had my own…

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Member Registration Thank you

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test 2

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Looking for a fun new sport this Summer? Give Boccia a go!

…the neuromuscular community to get involved, with Sydney-based clubs in Penrith, the Northern Beaches and Cronulla-Sutherland. Their Mission is to provide people with severe disabilities, who have significant physical impairments,…

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Still Skiing After All These Years

…when you are a DWA member. I take my companion card so my carer also receives a discounted ski pass. DWA members range from recreational skiers to Paralympians. The DWA…

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Powerchair Football Community Program

Come along to the next Sydney FC Foundation Community Program, supported by Football St George 𝟏𝟏- 𝟏𝟐𝐭𝐡 𝐉𝐮𝐥𝐲 2023 at Morris Iemma Indoor Sport Centre, Riverwood. The sport is for…

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School Bullying

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Powerchair Football – An interview with Jaxon Taylor

…a try, get in touch with Chris Suffield at christopher.suffield@hotmail.com or visit the NSW Powerchair Football Association Facebook page. Development sessions are a great chance for new players to get…

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Entitlements and Concessions

…information on local carer support, disability and community services. 1800 052 222 Commonwealth Respite & Carelink Centres Companion Card NSW The Companion Card allows people with a significant and permanent…

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Have your say in a national rare disease project

…professionals in coordinating comprehensive, family-centred care for chronic and complex patients with rare diseases and their families. In particular, they will soon be launching a rare disease ProjectECHO—a free real-time,…

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Coronavirus (COVID-19) information for people with disability

Commission Link to NDIA information Resources for Aboriginal and Torres Strait Islander people and remote communities Use trusted information sources How to make a complaint about a provider Visit www.ndiscommission.gov.au/participants/covid-19-people-disability…

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Register now for Sugar free September

…help to reach our goal of raising $200,000 to give sweet opportunities to kids and adults with muscular dystrophy. You”ll also be getting healthy, it’s a win-win! Register here: www.sugarfreeseptember.org.au…

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Spring clean your health with Sugar Free September

…online peer support programs. So, get involved and go #SugarFreeforMD. Are you ready to spring clean your health? Get more information and register at the Sugar Free September website www.sugarfreeseptember.org.au…

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Australian Neuromuscular Disease Registry

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Going sugar free is hard, but living with muscular dystrophy is much harder

…kids and adults living with neuromuscular conditions so they can live their best lives,” Ms Sangster concluded. Visit www.sugarfreeseptember.org.au for more information. Media Contact: Alicia Ballesty m) 0419045240 e) alicia.ballesty@mdnsw.org.au…

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