…recommend the Peer Connect program to others. “I usually do not like any online activities or being on camera with people but when the activities are fun based or about…

…self-manage I can send them to conferences on NMCs, and get them to undertake specific online training related to my needs. Often my staff would come back after being trained…

We are holding an online peer connect session for adults with Limb-Girdle MD. We’d love you to join in, meet new people, share experiences and information, and connect with others…

We are holding a peer connect session online for people with FSHD and their families, and parents of children with FSHD. We’d love you to join in, meet new people,…

…can walk short distances, but I use my powerchair to help me most of the time, especially at places like the park or school. My chair gives me the ability…

…to celebrate the neuromuscular community but also to raise awareness within local communities about neuromuscular conditions and the work that MDNSW do. “I want all my friends to come to…

…defect, enabling a diagnosis to be established for these 37 families. A subset of these diagnoses led to the discovery of new or under recognised disease mechanisms associated with the…

…qualified candidates in a relevant discipline to undertake research studies in neuromuscular disorders, leading to a PhD so you can fast-track your professional development and see your research make an…

…Beacon – good amount of time and good base but still so much more to see in NYC! Attractions Yankees Stadium Paul Ward, Coordinator, Disabled Services & Guest Relations pward@yankees*]}*.com…

…Community Transport Community Transport provides transportation for a nominal fee where other transport methods are not viable. To find your local community transport call: 1300 679 286 Community Transport Organisation…

…Week try out day, this Sunday 27th March, 2022 at New Era Stadium, Cabramatta Rugby League Club. Download the flyer or visit www.nswpdrla.com.au to learn more and register today 🏉…

…number of CUG repeats in the the DMPK gene, to now having several promising avenues for therapies (for recent reviews see (1, 2)). The mechanism of disease in myotonic dystrophy…

…premises such as brothels & massage parlours. Although Touching Base is based in NSW, the Referral List includes sex workers and premises in other states and territories within Australia. How…

…of children and families affected by neuromuscular conditions with all funds raised going towards MDNSW’s programs and services that include camps, retreats and online peer support programs. So, get involved…

If you live with Myotonic MD or are a family member of a person with MMD, you’re invited to come along to our Peer Connect Myotonic Meet Up! The session…

…need an OT assessment? Come and hear from your peers about what’s working for them. To register for this online session please RSVP to Carolyn at carolyn.cm@mdnsw.org.au or on 0408472510….

…learned about radio operations (two online and one in person). The third and final session was held earlier this month where all three were assessed and successfully completed the course….