…So having successfully negotiated our way into the NDIS (and that is another story) and with my daughter Bridget having completed her Masters Degree it was time for a holiday….

…decided to re-apply and complete my degree. I found out that my previous results had been accepted as advanced standing, meaning that I would not have to re-complete any previous…

…death of their fourth grade teacher, a doubtful Lyle decides to test the existence of God by attempting to get David to run again. Comedy The Healing Powers of dude…

…to deliver: that the results of the routine blood test pointed to the high likelihood that Benji had Duchenne Muscular Dystrophy (DMD). The first question he would have seen coming…

…causes runny stools and a high fibre food which causes blocked stools. There is no mid fibre food! Bowel pain is common and Buscopan has limited effect. I am incontinent…

Hear the latest research and medical info along with lived experience stories from your neuromuscular community! The MDNSW Neuromuscular Information & Research Day is back this August – bringing you…

Join us on Saturday, 22nd October 2022 for this free virtual event where you’ll hear hear the latest research and medical info along with lived experience stories from the MD…

…Lunch on the go from our favourite chain store Pret a Manger for healthy fresh wraps and sandwiches – such helpful staff opening our drinks, wiping my table – nothing…

…our family, and in some instances become part of the family. Trust and high level rapport is essential. They need to respect our privacy and sensitively communicate. Both parties need…

…information on local carer support, disability and community services. 1800 052 222 Commonwealth Respite & Carelink Centres Companion Card NSW The Companion Card allows people with a significant and permanent…

…DNA sequencing relating to FSHD. The kit is available free of charge, with only the cost of postage to return the completed test to the USA required. It can differentiate…

…American comedy drama series, a coming of age story that follows Sam, an 18-year-old on the autistic spectrum as he searches for love and independence The Fundamentals of Caring –…

…women in our neuromuscular community. We enjoyed a delicious high tea, trivia games and lots of laughs! We heard words of wisdom from our Women in Our Community Panel, which…

…FREE! Just visit www.hireup.com.au/partnership-mdnsw Through the support received from Hireup, we’ll be able to not only enhance our online Peer Connect program, but also introduce new and exciting client service…

…worried my chair had been broken or left in San Francisco…..but thankfully it was just slow to come out. Then we were told it would be a 3 hour wait…