…premier league and reserve grade season, download and complete the registration form below and email it to Chris Suffield at christopher.suffield@hotmail.com no later than 13th February 2021. NSWPFA Registration Form…

Did you know that an estimated 2 million Australians live with a rare disease? Despite variation among different rare diseases, people living with a rare disease face common challenges including…

…is a break for them from chores, and more time to relax after a big day of skiing! There are communal lounges with an open fire and board games, television…

…the neuromuscular community to get involved, with Sydney-based clubs in Penrith, the Northern Beaches and Cronulla-Sutherland. Their Mission is to provide people with severe disabilities, who have significant physical impairments,…

Come along to the next Sydney FC Foundation Community Program, supported by Football St George 𝟏𝟏- 𝟏𝟐𝐭𝐡 𝐉𝐮𝐥𝐲 2023 at Morris Iemma Indoor Sport Centre, Riverwood. The sport is for…

…help to reach our goal of raising $200,000 to give sweet opportunities to kids and adults with muscular dystrophy. You”ll also be getting healthy, it’s a win-win! Register here: www.sugarfreeseptember.org.au…

Recently PBAC announced that Risdiplam was recommended for those under 18 but not for those over 18. This is great news for children with SMA and their families, but adults…

…and for raising awareness and vital funds for the Muscular Dystrophy NSW community! The 2022 Blackmores Sydney Running Festival is an iconic event with a spectacular course that includes a…

…provision of an FSHD Saliva Research Test kit directly to the homes of any Australian seeking to be screened for FSHD. The kit utilises advanced technology to better understand the…

…an active member of the neuromuscular community for many years. “Living with an incurable rare genetic disorder, like muscular dystrophy, can be very confronting and isolating for many people, which…

…MD in NSW? Why not do something nice for your health whilst supporting our MD community? So, sign up at www.sugarfreeseptember.org.au and get ready to kick sugar’s butt this September!…

This story, by the ABC, focuses on the quiet housing revolution slowly giving Australians with disabilities more options. Specialist Disability Accommodation (SDA) funding in National Disability Insurance Scheme (NDIS) plans…

…Commission Link to NDIA information Resources for Aboriginal and Torres Strait Islander people and remote communities Use trusted information sources How to make a complaint about a provider Visit www.ndiscommission.gov.au/participants/covid-19-people-disability…

…Australia has collected resources for people with disability and disability service providers on important COVID-19 information. Visit their website for new information and resources as they become available at www.pwd.org.au/covid-19-hub….

…to improve the understanding of neuromuscular disease and accelerate the development of new therapies. By having a database of patients with neuromuscular diseases, clinicians and researchers are better able to…

When:​ Tuesday, 24th November, 2020 commencing at 6.00pm. Where: Online Zoom Meeting Room CLICK HERE TO JOIN. Meeting ID: 819 1266 6713 Passcode: 462393 RSVP via email to Charlotte Sangster…