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Diagnosis

…Father’s Memoir Publisher: Ginninderra Press, Port Adelaide, 2020 It is available as a paperback, from the Store on the publisher’s website: www.ginninderrapress.com.au It is also available on as an e-book…

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Powerchair Football – An interview with Jaxon Taylor

…A. My favourite position to play is on the wing. Q. How do you feel when you’re on the court? A. When I’m on the court, I have this adrenaline…

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Online Grief Information Sessions

…sessions at a fair price, including discounted tickets to those in financial difficulty. ​To find out more or to book into a session, click on the links below. https://www.thesession.com.au/online-grief-program https://sydneygriefcounselling.com/…

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The Big Apple of My Eye – NYC – Part 2

…Experience at sunset. Spectacular. Romantic. Magical. New York you’ve been an absolute blast….concrete jungle where dreams are made….we’ve wheeled 120kms around you and seen, smelt and felt so many incredible…

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2022-23 MDNSW Annual Impact Report

…Report for 2022-2023 is available now! Read on to see all the highlights of what we’ve achieved together as a community throughout the 2022-2023 financial year. Download the Impact Report….

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62nd MDNSW Annual General Meeting

…have performed and represented our community throughout the 2021-22 financial year. Details When:​ Saturday, 26th November, 10:30 – 11:30am. All attendees are invited to stay for our Community Day being…

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Neuromuscular Information and Research Days

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We’re excited to announce our partnership with Hireup!

FREE! Just visit www.hireup.com.au/partnership-mdnsw Through the support received from Hireup, we’ll be able to not only enhance our online Peer Connect program, but also introduce new and exciting client service…

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Scholarship Opportunities for Students with Disability

…to pay for expenses like textbooks, library and internet charges, on campus accommodation, transport, stationery, computer equipment, personal care and other related expenses. Gregory and Dolores Farrell Scholarship The Gregory…

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Batteries not included

…is quite a feat considering that I’m 6’2 and 110kg. It’s quick, and means that I don’t have to be rolled on the bed during dressing. My ceiling hoist was…

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Update on commencement of Covid-19 vaccine rollout

page will be regularly updated as more details are confirmed. The COVID-19 vaccine is free and voluntary. Further information can be found at the NDIS Quality and Safeguards Commission website….

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Starting In A Mainstream High School: MD Style!

…bullies, smart kids, etc. To be honest, kids can get disruptive, especially in their early years of high school. Although, as it comes to the end of the year, you…

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What we do

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Changes to the MDNSW Board

…his role as Chairman of the MDFA Board; and Michelle with expert knowledge in fundraising and marketing, ensured the growth and prosperity of our Sugar Free September campaign. We’ll miss…

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Hundreds to gather at Parramatta Park to raise awareness for rare genetic disorder effecting 13,000 people in NSW

…are so critically important to people living with neuromuscular conditions in New South Wales,” Her Excellency said. You can register for the event or make a donation by visiting www.team-md.org.au/event/big-red-roll-stroll-2023

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Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

the almost five-year mystery without any medical training!), ‘Are you sure it’s not MS?’ they say. They then get stuck on the ‘Why’ and the ‘How could this happen?’ Mostly,…

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Have your say in a national rare disease project

…You are invited to complete a short anonymous survey: RArEST health professionals needs assessment (qualtrics.com) If you have any questions about the survey, please contact the RArEST team on rarest@unsw.edu.au….

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Cruising Christmas Time – Jamie’s Journey to New Zealand

Jamie Larsen is 19 years old and lives with Bridget (mum), Carsten (dad) and Colonel (an affectionate Golden Retriever). When not occupied with work, school, power chair soccer, basketball and…

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Wonderful Women Connect at the Women’s Retreat

…I had the most amazing weekend ever!!!!! I got to do ‘normal’ things. I felt connected and had a complete sense of belonging…. I felt so loved, so safe and…

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Tigerman Dan

…highlight for Danny, he just about saw everyone including Madonna, Elton (4 times!), Michael Jackson, Queen, Dire Straits, Billy Joel, Pink, Dido and the list goes on and on. He…

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