…family members and carers FSHD Friends – a group for people living with FSHD SMArties – a group for people living with Spinal Muscular Atrophy (SMA) Duchenne Families – a…

…Relationships Australia can provide free counselling face to face, online or over the phone. All of their centres are wheelchair accessible and most sites have onsite parking. All centres are…

Housinghub.org.au is a national website that advertises properties for people with disability. It is free to use for people with disability searching for housing. The Housing Hub is an online…

…pressures used. My AHI has gone from 72 (times I stop breathing) to an average of 12 so that says it all! Although aiming for 5 or under, my sleep…

…a clever built in ramp out onto the balcony. The bed raisers were handy – there was space under the main bed, but not under the spare fold out –…

Applying the skills she learned at Torrens University Australia, Melanie Tran is the co-founder of AbilityMate, a company which uses 3D printing to create custom-made orthoses. She is also a…

…likely to have good common sense and not be afraid of bodily substances! It’s ok to trial different approaches to see what works/doesn’t work for you. Consider your own values…

…have a lifelong need for a high level of care to participate in community events and activities. The Companion Card allows a person’s carer free entry into participating venues and…

Join other adults living with a neuromuscular condition, and their family members, carers and friends, for a lovely social lunch at Dooleys Club in Lidcombe. A supportive and comfortable place…

…Camps. That night I also got to play some Jackbox Games with everyone. Jackbox Games are online party games played on our phones. It’s really just a way for us…

…was, and take this opportunity to thank our members for being part of our MDNSW community. Details When:​ Tuesday, 23rd November, 2021 commencing at 6.00pm. Where: Online Zoom Meeting Room…

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…getting good therapists to prepare reports, trials, quotes and other handy tips. It was clear that seeing other people’s success with technology increases knowledge and motivation to explore new ways…

…the neuromuscular community get answers to difficult questions and access some really helpful resources! Questions such as, “Who do I turn to if something goes wrong with my disability service?”…

…was listened to and was understood, not judged! Grateful to hear other’s stories and get ideas.” “Good to see that everyone’s very similar, got lots of things in common. I’m…

…the pool. Her hands curl and grip the poles as she is hoisted into the air and swung around. Her toes find the water first, then her ankles, then all…

…was, and take this opportunity to thank our members for being part of our MDNSW community. Details When:​ Tuesday, 23rd November, 2021 commencing at 6.00pm. Where: Online Zoom Meeting Room…

…Details This year, we are hosting our Annual General Meeting both in-person and online. When:​ Saturday, 3rd December, 10.30am. All attendees are invited to stay for our Community Day being…