…by spinal injury focussed training with concerns about me developing autonomic dysreflexia (a condition common for people with spinal injury not SMA). Self-directed model compared to traditional service model I…
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The Journey towards Self-Management
Cruising Christmas Time – Jamie’s Journey to New Zealand
…travel commode, Molift hoist and various other items including bed raisers, adaptors and “kerb jumpers”. We now have a travel list to the reduce sleep lost wondering whether we packed…
Read MoreIs this YOUR Carer?!
…time to get up, use commode, dress, into chair, off to computer in the living room to play game. “Are you hungry? Need water?” “No thanks, just need water by…
Read MoreOccupational Therapist – Physical Disability/Neuromuscular Specialist (Casual)
…candidate will be required to provide or obtain a current national police check, working with children check and NDIS worker screening, and complete MDNSW induction training within a specified timeframe….
Read MoreHundreds to gather at Parramatta Park to raise awareness for rare genetic disorder effecting 13,000 people in NSW
…is why events like this are so special. When we unite, we develop friendships, comradery, support and strength. To feel like you’re not alone, and part of a community that…
Read MoreWe’re supporting the Australian Neuromuscular Disease Registry
…our community. We encourage all MDNSW members living with a neuromuscular condition to find out more by visiting the website and to register your interest. Find out more at www.australiannmdregistry.org.au…
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Our Commitment to your safety
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As a disabled person trying to ‘live with’ Covid in Australia, every day is a game of figuring out who is least likely to kill me
…limited supply of rapid antigen tests and helping disabled people with Covid to navigate the hospital system. Following our advice, Victoria also set up the call-to-test service that enables disabled…
Read MorePeers Connect at Newcastle Retreat
…two people’s mobility scooters got hilariously ‘hooked up’- a real comedy sketch moment. Over breakfast, people talked about all sorts of things such as wanting to go to theatre shows…
Read MoreAsk A Scientist – Get answers straight from the experts
…by packing the ASOs into lipid vesicles (for example, (3)), or by connecting the ASO to another molecule; for example, a lipid (4) or peptide (5) that improves stability of…
Read MoreNeuromuscular Information & Research Day 2024
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Sarah Jenkins’ passion for drone photography was kindled during COVID lockdown. Now she’s an award winning creative.
…do anything in the community, because I was high risk to COVID, I was pretty much having to isolate from people,” Sarah says. She admits she was initially terrified she…
Read MoreLiving Independently
…make it possible for people with high support needs to live independently if they choose to. Accommodation options are limited at the moment, but growing. Read the story here: www.abc.net.au/news/2020-07-15/new-disability-housing-giving-people-more-options…
Read MoreStill Skiing After All These Years
…is a break for them from chores, and more time to relax after a big day of skiing! There are communal lounges with an open fire and board games, television…
Read MoreLooking for a fun new sport this Summer? Give Boccia a go!
…training sessions and upcoming come try days to be confirmed. The Clubs are looking for players of all ages, who meet the eligibility criteria of Boccia. Download the Boccia NSW…
Read MoreContact & Feedback
…more information please view our Compliments Suggestions and Complaints information which also includes contact information for other organisations that handles complaints, including the NDIS. Please complete the form below or…
Read MoreFood for the Soul
…to play competitive squash where I was winning hard-slog matches up until my diagnosis. I scuba dived, skydived, water skied, snow skied, played hockey, and competitively sailed back in the…
Read MoreAccessing Sex Worker Resources
…suitable, they make a booking. TOUCHING BASE CONTACT DETAILS www.touchingbase.org 0424 591 409 info@touchingbase.org Content contributed by Touching Base. Source: IDEAS July – August 2019 Newsletter IDEAS website: www.ideas.org.au …
Read MoreCOMMUNITY SURVEY – Help us return safely to face-to-face programs!
…the MDNSW community to complete this short five minute, confidential, survey. Your answers will help to inform the development of a Covid-19 Vaccination Policy for MDNSW which may influence how…
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