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Grow Bold

…Australian disability service directory that allows people with disabilities to rate and review their services. He has a Masters in Writing, Editing and Publishing from the University of Queensland and

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My quest to help other wheelchair users to travel

My name is Scott Green, I’m 19 and I completed the Diploma of Travel and Tourism Management last year at TAFE. I’ve travelled to many places including America, New Zealand

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Women Sparkle and Shine at the MDNSW Women’s Retreat

…women shared their lives, the positives, challenges and the strengths within – we certainly have some remarkable women in our NMC community. The buffet breakfast was served with lots of…

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Member Registration Thank you

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Living with Dermatomyositis

Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children and three dogs. Career wise, I’ve worked in Marketing Communications and I’ve had my own…

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Powerchair Football Community Program

Come along to the next Sydney FC Foundation Community Program, supported by Football St George 𝟏𝟏- 𝟏𝟐𝐭𝐡 𝐉𝐮𝐥𝐲 2023 at Morris Iemma Indoor Sport Centre, Riverwood. The sport is for

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My Gifts as a Parent with SMA

…probably a competitive advantage for your child, if you do not! Bio: My days consist of trying to stay calm (although high levels of caffeine are needed) living the crazy…

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Omicron wreaks havoc on NSW’s vulnerable

…at the UTS business school, says this collection of problems highlights the lack of ongoing strategic understanding of the disability community. He has a high-level spinal cord injury and relies…

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Siblings Day Out

Who can come? Kids 6-16 years old who have a brother or sister with a neuromuscular condition. What? High ropes or games at the oval, Giant Slip n Slide, Fish…

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Team MD legends going the extra mile

and for raising awareness and vital funds for the Muscular Dystrophy NSW community! The 2022 Blackmores Sydney Running Festival is an iconic event with a spectacular course that includes a…

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Coronavirus (COVID-19) information for people with disability

Commission Link to NDIA information Resources for Aboriginal and Torres Strait Islander people and remote communities Use trusted information sources How to make a complaint about a provider Visit www.ndiscommission.gov.au/participants/covid-19-people-disability…

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Covid-19 Hub from People with Disability Australia

…Australia has collected resources for people with disability and disability service providers on important COVID-19 information. Visit their website for new information and resources as they become available at www.pwd.org.au/covid-19-hub….

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Australian Neuromuscular Disease Registry

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Reports on NDIS participants with Sensory Disability and Neurodegenerative Conditions released

and payments in their NDIS plan compared with the Scheme overall. Participants with Motor neurone disease have the highest average annual committed supports, followed by participants with Huntington’s disease. Participants…

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Help us plan and provide for a neuromuscular community you deserve

…on Friday 6 May 2022. Should you choose to leave your details upon completing the survey, you’ll go in the draw to win $100 gift card! Woohoo! COMPLETE THE SURVEY…

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Your experience living with a neuromuscular condition during COVID-19

…about your experience. The results will assist us to provide strengthened advocacy to federal, state and local government agencies for people living with a neuromuscular condition. Complete the survey here…

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Melanie’s Career Takes Off

…client and former employee of MDNSW. Melanie attended our camp when she was a teen, and went on to complete her Gold Award through our Duke of Edinburgh program. Joining…

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1996 PhD Scholarship Award Recipient: Clinical Professor Kristi Jones

…to be part of the Board and have stayed for over 15 years (until 2021). Can you tell us more about the research you completed at the time? The dystrophin…

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Targeting Tokyo – My journey with Boccia

…until I began playing boccia. From there, I started competing in state and national level competitions over the next 3 years before I was selected to represent my country at…

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My Journey to wear Green and Gold

…much freedom my wheelchair has given me, and I didn’t know it at the time, but it would open so many doors for me, doors I didn’t even know existed….

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