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Summer Camp

come: Kids and young people with a neuromuscular condition, 6-18 who use a power wheelchair for mobility. Dates: Saturday, 16th – Wednesday, 20th December 2023 Where: Sydney Academy of Sport…

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Coronavirus (COVID-19) information for people with disability

Commission Link to NDIA information Resources for Aboriginal and Torres Strait Islander people and remote communities Use trusted information sources How to make a complaint about a provider Visit www.ndiscommission.gov.au/participants/covid-19-people-disability…

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We need a treatment for adults with SMA

…asked the Australian Neuromuscular Disease Registry for data. We need as many people as possible to get onto this registry, so please visit www.australiannmdregistry.org.au Together we can make a difference!…

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MDNSW Big Red Roll & Stroll Press Release

Registrations for the Big Red Roll & Stroll are open now. For more information, visit: https://www.team-md.org.au/event/big-red-roll-stroll-2024/. MDNSW is NSW’s leading not-for-profit organisation dedicated to supporting people living with a neuromuscular…

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News & Media

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My quest to help other wheelchair users to travel

the Pearl Harbour Memorial Next, I started organising the bed, hoist and commode. The company, Daily Living Products who supply this medical equipment have been fantastic. I’m arriving on a…

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In Memoriam

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1996 PhD Scholarship Award Recipient: Clinical Professor Kristi Jones

…to learn more about our current scholarship offerings? Visit our page or alternatively, contact our team on (02) 9888 5711 or e-mail us at info@mdnsw.org.au for more information.    …

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Community Coalition Demands Immediate Action To Vaccinate People With Disability Against COVID-19

…Delta variant of COVID-19. The coalition has issued an open letter with an 11-point plan outlining urgent activities for prioritising the vaccine rollout for people with disability. Read the Media…

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Duke of Edinburgh’s International Award

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Are you ready for an adventure this April?

…and much more. We can’t wait to see you there! “Only 1 full day left? I don’t want to go home! Can’t wait to come back to camp!” – Finn,…

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Neuromuscular Information & Research Day

…topical issues including swallowing, reproductive options, advocacy, new treatments, mobility and more! Register today HERE! WHEN: Saturday, 5th August 2023, 12:00 – 4:30pm (AEST) WHERE: Online via Zoom COST: Free

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Your MDNSW 2019-20 Yearbook

…whom we wouldn’t be here. Thank you everyone for your continuous support through these extraordinary times. Download your own digital copy of the Yearbook below: DOWNLOAD YOUR MDNSW 2019-20 YEARBOOK…

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GAMING!

…dystrophy and my interests include gaming, sport, music, learning and socialising. I live in Sydney, Australia. In this story I share my journey with gaming throughout my life, and how…

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On the Town! Booking Tickets to Accessible Venues

…more information about Ticketek’s policy, see their information page, How do I book an accessible seat? The NSW Companion Card program is for people with significant and permanent disability who…

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Spring Roll & Potluck Picnic

…WHEN: Saturday 28 September from 12 – 3pm WHERE: Eric Primrose Reserve Rydalmere RSVP by 19 September by contacting us at info@mdnsw.org.au or on (02) 9888 5711. Download the FLYER!…

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Register for small group workshops now

…from September through to end of November. The Workshops will focus on: NDIS Self-Management Speaking Up for Yourself (Self-Advocacy) Reframing Resilience What makes PDCN Workshops different? Numbers are capped at…

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Makers’ Day

…3pm. The venue is wheelchair accessible, has free parking on site and is close to Lidcombe train station. Download flyer. To register please contact info@mdnsw.org.au or call (02) 9888 5711….

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PDCN Post-Traumatic Growth Workshop

The Physical Disability Council of NSW is hosting a brand new free Post-Traumatic Growth (PTG) Workshop via Zoom on Tuesday 22 November, from 10:00am – 12:15pm. This workshop provides information…

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Neuromuscular Information & Research Day

…Neuromuscular Disease Registry. What’s new with Myotonic MD? Presented by Dr Sandi Kariyawasam, Paediatric Neurologist, Sydney Children’s Hospital. Dealing with changes in NMC’s (Mobility, BiPAP, Support Workers and more!), presented…

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