We’re supporting the Australian Neuromuscular Disease Registry
The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a neuromuscular disease.
It collects important medical information from adult and child patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.
By having a database of patients with neuromuscular diseases, clinicians and researchers are better able to understand the underlying history of these conditions and how best to monitor and treat them. More immediately, recruitment into clinical trials, and finding clinics and services, will become more easily accessible through the registry hub.
MDNSW has partnered with the ANMDR because we believe in their work and the benefits it can bring to our community. We encourage all MDNSW members living with a neuromuscular condition to find out more by visiting the website and to register your interest.
Find out more at www.australiannmdregistry.org.au