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Genetic testing: SMA added to newborn heel prick in ‘profound’ change in medical screening
A great result and advancement in SMA research! In an Australian first, newborn babies are now being routinely screened for the genetic condition Spinal Muscular Atrophy (SMA). An early diagnosis will mean treatment can start sooner. Read More
TREAT NMD -October 2019 Newsletter
Check out the latest TREAT NMD Newsletter! Read More
Interested in Powerchair Hockey?
The hockey season starts Sunday 12th October, all are welcome to come and try. Why not arrive early and watch some of a game before you have a go? Read More
TREAT-NMD Global Database Oversight Committee Quarterly Newsletter – August 2019
A quarterly newsletter dedicated to news, events and information relevant to the TGDOC registries' community. (TREAT-NMD Global Database Oversight Committee) Read More
The Royal Australian Navy Open Day 22 Sep 2019
Ahoy there! NSW Kids in Need is gearing up for The Royal Australian Navy Open Day and on the day, visitors will have the unique opportunity to explore HMAS Melbourne while the Army will also feature dockside displays. Ticket sales support six kid’s charities including Muscular Dystrophy NSW so please share with your networks. Please… Read More
Sydney Airport Adventure – NSW Kids In Need Open Day 22 Sep 2019
The Sydney Airport’s 1.5 hour Airside Adventure on Sunday 22nd September 2019 is a unique chance to step into the world of aviation and check out what goes on behind the scenes at Australia's busiest airport. NSW Kids in Need supports six kid’s charities through their fundraising including Muscular Dystrophy NSW. Please note that unfortunately,… Read More
The Disability Royal Commission
The Disability Royal Commission is now accepting submissions and wants to hear from all Australians about their experiences of violence, abuse, neglect and exploitation of people with disability. If you would like to learn more about the submission process and support services in place, Read More
End Disability Discrimination Now
For the 4.3 million Australians living with a disability it’s not the day to day tasks that hold them back, it’s the lack of employment opportunities. Today, the Dylan Alcott foundation is launching a new campaign to change that. Read More
Some great information about NDIS and travel
Are you an NDIS participant travelling overseas? If you are self or plan managed, you have the option of using your NDIS funds on supports and services while overseas for up to six weeks (or sometimes longer, if given explicit permission) Read More
Kids in Need Fast Jets & Amazing Pilots Event
After the unfortunate postponement of the last event due to adverse weather conditions, the NSW Kids in Need Fast Jets and Amazing Pilots event at Quakers Hill has been confirmed to go ahead on August 4! Ticket holders, keep an eye out for an email confirming details, and ticket sales are open as well for… Read More