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OUR BOARD

The board of Muscular Dystrophy NSW (MDNSW) provides direction, support and governance oversight to the strategic goals of the association.

The Board ensures MDNSW conforms with or exceeds its legal requirements, including financial and audit requirements.


Board Directors

Anthony Ball

President

Anthony has been ClubsNSW CEO since 2010 and is also CEO of ClubKENO Holdings and the Executive Director of ClubsAustralia, the national umbrella association for clubs.

Anthony has been with ClubsNSW since 1999 and prior to his appointment as CEO, he was Executive Manager for Policy and Government and was responsible for state and national based industry advocacy. He has a Bachelor of Economics from the Australian National University, a Certificate of Public Affairs from the University of Sydney and is a graduate of the American University’s Public Affairs and Advocacy Institute in Washington DC.

Shannon Finch

ANU BA (Hons) LLB (Hons), MAICD – Vice President

Shannon Finch is a senior partner of a global corporate law firm, Jones Day.

Shannon has been a corporate lawyer for over 25 years, in Canberra, London and Sydney, with both private practice and government experience.

She is national Chairman of the Corporations Committee of the Law Council of Australia, and is a guest-lecturer on securities and disclosure laws at the University of Sydney and University of NSW. Shannon is also a non-executive director of ParaQuad.

Richard Arnheim

BCom – Treasurer

Member Institute of Chartered Accountants in Australia, Fellow Financial Planning Association of Australia, Certified Financial Planner,  Diploma of Financial Planning – Deakin University, Principal Arnheim Gillard Financial Consultants 1986 – 2008 and principal Arnheim Hornbrook Chartered Accountants 1986 – 2000, Authorised Representative and principal advisor of Shadforth Financial Group 2008- present.

Rick Arnheim from early teens has had a neuromuscular condition broadly similar to Limb Girdle Muscular Dystrophy.

Clinical A/Professor Kristi Jones

MBBS, FRACP, CG(HGSA), PhD – Medical Director

Kristi Jones is a Paediatrician and Clinical Geneticist with a special interest in genetic neuromuscular conditions. She is Co-Head of the Department of Clinical Genetics at the Children’s Hospital at Westmead, and is part of the clinical neuromuscular service at Children’s Hospital at Westmead.

Kristi graduated from The University of Sydney in 1990. Her post-graduate qualifications include: Fellowship of the Royal Australasian College of Physicians, Clinical Geneticist of the Human Genetics Society of Australasia (HGSA), and a Doctorate (PhD).

She also consults at Genea, seeing couples going through their preimplantation genetic diagnosis (PGD) program.

Kristi’s current research interests stem from her PhD, and focus on the clinical and genetic diagnosis of muscular dystrophies and therapeutic trials for genetic muscle disease. She heads the Clinical Trials Unit within the Institute for Neuroscience and Muscle Research at Children’s Hospital at Westmead.

She is a Clinical Associate Professor in the Discipline of Paediatrics and Child Health, Sydney Medical School, at the University of Sydney, lecturing and teaching in paediatrics and genetics.

Kristi is a member of the Human Genetics Society of Australasia, and the Australasian Association of Clinical Geneticists.

Kim Brislane

Director

Kim Brislane has specialised in the Not for Profit sector  for over 20 years honing her skills as the National CEO of The Duke of Edinburgh’s Award in Australia from 2007 – 2012.

Kim has also worked with the Coca Cola Foundation, The Sydney Children’s Hospital Foundation, Odyssey House, The International Award for Young People as well as Flight Centre globally and Porsche.  

In 2011 Kim was one of three Not-for-Profit CEOs awarded a Harvard Business School scholarship held in Sydney. She sits on two other Boards focusing on Women’s Health and Legal Aid for the wider Blue Mountains and regional community and is an Ambassador of The Duke of Edinburgh’s Award in Australia.

Christina Liang

MBBS, BSc(Med), FRACP - Director

Christina is a neurologist with subspecialty interests in Neuromuscular and Neurogenetic Disorders, and the management of Parkinson’s disease.

She graduated from UNSW and completed her Neurology & Neurophysiology training at Westmead and Royal North Shore Hospitals. She is a staff specialist at Royal North Shore Hospital, and her doctoral thesis with the University of Sydney was on the management of adults with mitochondrial diseases.

Christina cares for adolescents and adults with inherited and acquired neuromuscular and mitochondrial conditions through the Neuromuscular, Transition and Neurogenetics Clinics.

David Kay

Director

David is a Director in KPMG’s Health, Ageing and Human Services team.  He has more than 15 years’ experience in advising governments and not-for-profit organisations on disability sector reform, program review and evaluation, strategic planning and operational improvement.  

The majority of David’s recent work has focused on the implementation of the National Disability Insurance Scheme (NDIS).

David is currently the Chair of the Muscular Dystrophy Foundation Australia – the national coordinating body for muscular dystrophy support organisations – and is on the board of Accessible Arts NSW.  David has Emery Dreifuss muscular dystrophy.

Nathan Teong

BCom, GradDipAppFin - Director

Nathan has worked in the Funds Management industry for 20 years, working in various roles across the Accounting, Investment Operations, Client Services and Performance Reporting teams.

He is currently Performance Reporting Team Leader at Magellan Asset Management, a leading global equity and global listed infrastructure investment manager. He holds a Bachelor of Commerce from The University of Newcastle and a Graduate Diploma of Applied Finance from Kaplan Professional.

Nathan’s young son, George, was diagnosed with a congenital myopathy at 4 months of age.

Stuart Uhlhorn

Director

Stuart is experienced, independent commercially qualified company director with extensive business experience gained both in Australia and overseas. Industries worked in have included; Aged care sector, Oil and Gas, Insurance and finance, Property Investment and Management, Industrial services and Rail engineering services.

He has worked on numerous commercial Joint Venture and Not for Profit Boards including UnitingCare Ageing (NSW.ACT), which he chaired from 2011 to 2014, and UnitingCare. He is a Fellow of the AICD and a Fellow of CPA Australia and has an Economics degree and a post graduate diploma in Financial Management.

Michelle Ball

Director

Michelle is Senior Vice President and Head of Human Resources for Bank of America Merrill Lynch and a member of the Executive Committee for Australia. In addition, Michelle is the Regional Learning, Leadership Development and Diversity & Inclusion Executive covering 12 countries across Asia Pacific.

Previously, Michelle held several senior regional European and Emerging Market HR roles in both the Banking and Pharmaceutical industries. Before moving into HR, Michelle held a variety of roles within sales and marketing for Johnson and Johnson in the United Kingdom and Australia. Michelle is also a member of the Australia Institute of Company Directors. Michelle qualified as a Dietitian with the University of Newcastle and gained experience as a clinical and community Dietitian. Michelle is also an AOEC accredited Executive Coach.

Michelle is a mother of little boy with a rare form of Congenital Muscular Dystrophy and was one of the leaders of a crowdfund campaign called Beat4life which connected people globally to fund critical research in the US. Michelle has attended several international conferences to help advocate for the required research pathways and remains very connected to key scientists, clinicians and patient groups globally, all with a united vision to make strides forward in research for suitable treatments and a cure.

Committees

Currently, the board has 6 full board meetings per year. Board sub-committees provide extra focus and skills to Muscular Dystrophy NSW and consist of the following:

  • Finance, Governance & Risk Committee
  • Fundraising & Marketing Committee
  • Research & Clients Services Committee

Board Charter

The Charter sets out the role, composition and responsibilities of the Board of Directors and complements detail provided in MDNSW’s Constitution.

Click here for more information about MDNSW’s Board Charter.