Your Neuromuscular Support Community

We support people living with a neuromuscular condition and their families at every life stage.

People living with neuromuscular conditions in NSW

Muscular Dystrophy NSW community members

Program participants

Who we are

Our mission is to empower, connect and support the neuromuscular community, and be an effective advocate for the neuromuscular community.  Our vision is that every person with a neuromuscular condition is able to live a life they choose.

Muscular Dystrophy NSW is NSW’s leading not-for-profit organisation supporting people living with a neuromuscular condition and their families at every life stage.

For over 65 years, we’ve connected people across NSW to the support programs they want and the community they need. We offer advocacy, community events including camps and retreats, peer support and connection, NDIS support coordination, links to the latest information, support services and more.

We achieve our mission by providing:

  • Information and support.
  • Events that foster community connection.
  • Representation of the community through advocacy.
  • Support for neuromuscular research through external PhD scholarship sponsorship.
NDIS Support Coordination
What we do

Our services are tailored for people living with neuromuscular conditions.

Leave a gift in your will
Our values

Empowerment, responsiveness, integrity and respect, and partnerships and teamwork are at the heart of all we do.

Our-history
Our history

For over 65 years, we’ve been committed to improving outcomes for people living with neuromuscular conditions.

Upcoming events

View all events

Contact Us

Say hello & contact our friendly team today.

Phone: (02) 9888 5711

Freecall: 1800 635 109

Proud partnerships and memberships

MDNSW Logo

Muscular Dystrophy NSW
ABN 11 774 587 436

Registered CharityNDIS
Contact

Phone: (02) 9888 5711

Freecall: 1800 635 109

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

© 2025 Muscular Dystrophy Association of NSW. All Rights Reserved. Website by Wolf IQ

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