Where people with FSHD lead the conversation.
Join us for our FSHD Friends online meetup for people with Facioscapulohumeral Muscular Dystrophy (FSHD) and their families. It’s a supportive space where members choose the topicvs, share lived experiences and pass on helpful information. Whether it’s tips, questions or just a good story, everyone’s input helps us learn from each other and feel more connected.
We’ll be joined by Emma Weatherly, the purpose-driven Managing Director of the FSHD Global Research Foundation. Diagnosed with FSHD in her early 30s, Emma quickly forged strong connections within the FSHD community, becoming a prominent advocate for FSHD, Muscular Dystrophy, and the rights and inclusion of people with disabilities.
WHEN: Tuesday 3 March 2026, 7 – 8:30pm
WHERE: Online
Keen to join the FSHD conversation?
Register now by emailing info@mdnsw.org.au or calling (02) 9888 5711.
It is lovely to connect with others. The meetings are so welcoming, informative and fun.
Say hello & contact our friendly team today.
Email: info@mdnsw.org.au
Phone: (02) 9888 5711
Freecall: 1800 635 109
Muscular Dystrophy NSW
ABN 11 774 587 436
Phone: (02) 9888 5711
Freecall: 1800 635 109
Email: info@mdnsw.org.au
Postal Address: PO Box 3071, North Strathfield NSW 2137
Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.
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