Resources

The Disability Gateway is a portal of information and services to help people living with disabilities, their family, friends and carers.

Disability Advocacy is a free individual advocacy service that supports people with disabilities.

Carer Gateway, connects carers with an Australia-wide network of Carer Gateway service providers.

The Physical Disability Council of NSW assists people living with a physical disability to live ordinary lives by providing opportunities for individuals to gain the information, knowledge and skills necessary to manage their own lives.

The NDIS provides funding to eligible people living with disability to gain an improved quality of life. The NDIS also connects anyone with disability to services in their community.

The Loop is a resource built for the neuromuscular community, by the neuromuscular community. It’s a safe and secure space to connect with voices like yours. Join a conversation, give and get advice or share your story.

People With Disability Australia (PWDA) is Australia’s peak rights and advocacy organisation by and for people with disability or who are d/Deaf.

Housinghub.org.au is a national website that advertises properties for people with disability. It is free to use for people with disability searching for housing.

Sunny is 1800RESPECT’s app for people with disability who have experienced violence and abuse.

The Australian Centre for Disability Law is a NSW state-wide Community Legal Centre specialising in the legal rights of people with disability.

The National Disability Abuse and Neglect Hotline (The Hotline), is a free, independent and confidential service for reporting abuse and neglect of people with disability.

EnableNSW provides equipment and services to people in NSW with chronic health conditions or disability to assist them with mobility, communication and self-care.

Services Australia provides support Payments and services for those living with disability as well as resources for other help and support available in the community.

The NSW Government offers information, services and opportunities to fit the needs of people living with a disability.

News and research articles from Western Australia’s longest established medical research institute, located in the Queen Elizabeth II Medical Centre site at Nedlands in Perth.

News and research articles from the team of scientists, doctors and allied health professionals who study and treat brain, muscle and nerve disorders that affect children and their families. The Kids Neuroscience Centre is located at the The Children’s Hospital at Westmead in Sydney.

The Australian Neuromuscular Disease Registry (ANMDR) is an Australia-wide registry of people diagnosed with a neuromuscular disease. It collects important medical information from adult and child patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies. If you have a neuromuscular condition, you can get involved by signing up here.

Muscular Dystrophy Foundation Australia (MDF) is the national peak body representing the interests of more than 40,000 Australians living with muscular dystrophy, and similar, rare conditions.

Capital Region Muscular Dystrophy is a not for profit, registered charity working to make everyday life easier for anyone with one of the many forms of muscular dystrophy, their families and carers in the Canberra region.

Muscular Dystrophy Tasmania supports Tasmanian families living with MD and allied Neuromuscular Conditions.

Muscular Dystrophy Queensland provides vital services and support for local people living with muscular dystrophy and similar neuromuscular conditions and their families, throughout every life stage.

Neuromuscular WA aims to improve the quality of life for people living with neuromuscular conditions in WA and to be the first choice for support and services.

A comprehensive, up-to-date and thoughtful site which provides important breaking news and information on research and clinical trials in the UK and around the world. Muscular Dystrophy Campaign is the major MD association in the UK.

TREAT-NMD is a European network which brings together people with neuromuscular diseases and specialists (scientists, healthcare professionals and pharmaceutical companies) working on treatments for these conditions. This is a particularly good reference site which highlights the serious efforts being made in Europe to research and develop treatments for NMDs and also provides much useful information.

The research news page of Muscular Dystrophy Association USA with archives going back over a decade. The organisation was founded by a group of families in 1950.

Muscular Dystrophy News is a US based digital news publication dedicated to offering comprehensive daily news coverage of MD.

The muscular dystrophy page of Medline Plus, published by the U.S. National Library of Medicine and the National Institutes of Health. A major reference site for information on all forms of muscular dystrophy, including diagnosis & symptoms, treatment, research, and further reference links.

The news page of the French Muscular Dystrophy Association is conveniently translated into English. AFM-Téléthon is one of the largest and most active MD associations in the world. In 2008 it raised over €100 million through its annual national Telethon which is now part of its name. These funds are used to research and develop treatments and therapies for muscular dystrophy.

A commercial medical news web site with up-to-date news on research related to muscular dystrophy, amyotrophic lateral sclerosis (ALS), Lou Gehrig’s Disease and muscular atrophy.

Powerchair Football is a modified version of football (soccer) played by powerchair users. The sport features specially modified powerchairs and an oversized ball.

Powerchair hockey is a modified version of ice hockey for powerchair users. The sport is played on an indoor basketball court rather than an ice rink.

Disability Sports Australia (DSA) is one of Australia’s National Sporting Organisations for people with a disability (NSODs) and aims to improve the lives of Australians living with disability using sport as the medium.

Boccia is played indoors and tests competitors’ degree of accuracy. Competing in wheelchairs, athletes throw, kick or use a ramp device to propel leather balls as close as possible to a white ball called the ‘jack’.

JobAccess is the national hub for workplace and employment information for people with disability, employers and service providers. They help people with disability find and keep jobs, get promoted to better jobs, upgrade or expand their workplace skills, and more.

The Get Ready website is full of information on post-school options available to people with a disability, reasonable adjustments available in study and work, disclosure and other resources.