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Research

Driving innovation in neuromuscular research.

We’re committed to supporting research that investigates treatments and therapies, as well as other studies of neuromuscular conditions.

Across Australia, Muscular Dystrophy associations are driving research projects that can lead to progress and breakthroughs in treatment and care. These advancements encourage the pursuit of new solutions for people living with neuromuscular conditions.

Research
Research Scholarships

From time to time, we offer research scholarships to contribute to the development of new diagnosis and treatment of neuromuscular conditions.
Neuromuscular Information
Neuromuscular Information & Research Day

Hear from medical experts and community members as they share the latest research, clinical updates and lived experience stories.
Australian Neuromuscular Disease Registry

Join a national registry to support research, improve understanding and fast-track the development of new therapies.
Helpful Resources
Resources

Stay informed with the latest research, news and helpful links from Australia and around the world.
Leave a gift in your will
Neuromuscular Clinics

Find and connect with specialist neuromuscular clinics near you.
Fact sheets
Neuromuscular Conditions
A-Z

Explore a wide range of neuromuscular conditions, with information on symptoms, treatment options and day-to-day impact.

Research scholarship recipient testimonials

Testimonials

“I wouldn’t be (where I am today) if it weren’t for the MDNSW scholarship. It was a leap of faith and I’m hugely grateful for the vision of the Board and teams. The MDNSW community has become a huge part of my life for so many years and I’m excited to see a new era of genetic therapy making a difference in people’s lives.”

Kristi
1996 MDNSW Scholarship Recipient & Head of Department of Clinical Genetics at the Children’s Hospital, Westmead

“I am incredibly grateful for all the financial support provided by MDNSW that enabled me to complete this body of work and am honoured to have been given the opportunity to help this inspirational community with my research.”

Samantha
2018 MDNSW PhD Scholarship Recipient & Research Officer at Kids Neuroscience Centre
“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”
Effie, John’s Mum
“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”
Effie, John’s Mum
“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”
Effie, John’s Mum

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Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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