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Tag: SMA

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Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is

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Adventure Wheels

UK couple Karla and Stephen aim to show that camping, caravanning and motorhoming is a

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Neuromuscular Fact Sheets

To address some of the issues identified by people with neuromuscular conditions in getting appropriate

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Growing Up with Spinal Muscular Atrophy

Maija, a young girl in New Zealand talks about her life with SMA, and the

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“Iso reading” book review

Awesome Australian disability advocate Carly Finlay reviews US YouTube sensation Shane Burcaw’s autobiographical, humorous read

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Breath of Fresh Air

For a long time I had known that the likelihood of needing nocturnal ventilation was

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Melanie’s Career Takes Off

Applying the skills she learned at Torrens University Australia, Melanie Tran is the co-founder of AbilityMate, a

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Working from a Wheelchair

In this helpful video from the United States, a young woman talks about how she

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Lives in Action – on SBS On Demand

“Lives in Action” is a short documentary made inclusively, both in front of, and behind

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Taking a Chance on Love

An Interview with Natalie Macaulay Natalie generously shares her story about how she met and

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Born Different, Ellie DP

Meet EllieDP, an aspiring fashionista living with SMA in the UK. With thanks to Barcroft

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Living with SMA

My name is Ellie Robertson and I am a woman living with Spinal Muscular Atrophy

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My Gifts as a Parent with SMA

Something that I have noticed as a parent with Spinal Muscular Atrophy (SMA), is other

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Targeting Tokyo – My journey with Boccia

My journey with Boccia began when I was introduced to the sport as a  15-year-old

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Being disabled doesn’t stop us being great parents

This wonderful video from England tells the story of two people with disability raising their

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Fashionably yours

This video features a young woman named Ellie DP, from Essex, UK. She is a

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