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WHO WE ARE

Organisation Overview

Muscular Dystrophy NSW is a membership-based not-for-profit organisation supporting and connecting people with neuromuscular conditions (muscular dystrophy) and their families.

At Muscular Dystrophy NSW, our mission is to empower, connect and support people with neuromuscular conditions, and be an effective advocate for the neuromuscular community.

We achieve this by providing:

  • Information, support coordination and direct services such as camps and retreats.
  • Events that bring people in our community together to share, learn from and support each other.
  • A strong commitment to research into treatments for neuromuscular conditions, raising funds to sponsor individual researchers and research institutions.

Download our Organisation Overview for further details.

Our Team

Our dedicated team bring a wealth of experience, commitment and enthusiasm to our work.

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Our Board

The board of Muscular Dystrophy NSW brings together medical and private sector professionals, some of whom live with, or have a loved one living with a neuromuscular condition.

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Our Constitution

The Constitution and articles of association sets out Muscular Dystrophy NSW’s structure and operations in fulfilling its role of representing the interests of people with neuromuscular conditions, their families and the community in general.

Our History

Muscular Dystrophy Association of NSW (MDNSW) commenced operation in 1957 as a specialist support group within the Society for Crippled Children, now known as Northcott Disability Services.

People living with neuromuscular conditions, and their families, were instrumental in setting up MDNSW as a separate entity from Northcott.

For over 60 years we have been building on the passion and commitment of our founders for improved outcomes for people with neuromuscular conditions.

In the early days, all the Association’s work was voluntary and was done by family members. Our name and logo was changed to Muscular Dystrophy NSW in 2008, to reflect our status as one of several state and territory MD organisations within Australia, providing services to people affected by neuromuscular conditions.

Our Patron

Her Excellency the Honourable Margaret Beazley AC QC is the 39th Governor of New South Wales, commencing her five year tenure on 2 May 2019.

Prior to her appointment as Governor, Her Excellency enjoyed a long and distinguished law career spanning 43 years, during which time she served as a role model for women in law at both the State and national level.

Appointed Queen’s Counsel in 1989, in 1993 she was made a judge of the Federal Court of Australia, the first woman to sit exclusively in that Court. In 1996, she achieved the distinction of being the first woman appointed to the New South Wales Court of Appeal and, subsequently, as the first woman to be appointed as its President. She served, on a number of occasions, as Administrator of the Government of the State of New South Wales.

She was made a Companion of the Order of Australia in the Australia Day Honours List on 26 January 2020 for “eminent service to the people of New South Wales, particularly through leadership roles in the judiciary, and as a mentor of young women lawyers”.

Her Excellency has three children – Erin, Lauren and Anthony Sullivan – and is married to Mr. Dennis Wilson, a barrister, mediator, accredited international arbitrator and Adjunct Professor of Law, at Notre Dame University, Sydney.

Her Excellency brings her deep commitment to education, youth leadership, human rights and social justice to the role in service of the people of New South Wales.