About Us

Muscular Dystrophy NSW exists to empower, connect and support people with neuromuscular conditions, and be an effective advocate for the neuromuscular community. We do this through information, support and direct services. In addition to the provision of client focused services, MDNSW maintains a strong commitment to research, with funds made available each year to individual researchers as well as research institutions.

Our services include:
• Camps for Kids and Young Adults
• Retreats
• NDIS Support Coordination
• Provision of Specialist Information
• Duke of Edinburgh’s Award Program
• Sport and Recreation
• Social events
• Annual Medical Seminar


For over 60 years we have been building on the passion and commitment of our founders for improved outcomes for people with neuromuscular conditions. We have also built partnerships with other disability service providers to enable us to meet the needs of the broader community.


People with neuromuscular disorders and their families face unique challenges and have unique support needs due to the progressive nature of their condition. The frequent need for ventilators and vulnerability of clients to respiratory conditions also creates challenges for mainstream services.


Should you require a quote for services under your NDIS plan or would like us to provide specialised Support Coordination for those with a neuromuscular condition please contact us on 1800 635 109 or email