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For Parents and Carers

Personalised support and programs to help you and your family along the journey

Navigating a neuromuscular condition as a parent or carer can feel overwhelming, especially in the early days after a diagnosis. You don’t have to do it alone.

At MDNSW, we provide trusted information, guidance and personalised support for parents and carers at every life stage. Whether you’re seeking practical advice, emotional support, or connection with others who understand, we’re here for you.

From early diagnosis support to peer groups, retreats and information sessions, our programs are designed to support both you and the person you care for – because your wellbeing matters too.

Ready to talk to someone who understands?

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We help parents and carers

  • Build confidence and feel more informed about the journey ahead
  • Receive guidance and advice on topics such as the NDIS and carer support
  • Reduce feelings of isolation and loneliness
  • Create a sense of belonging within a community that understands
  • Connect with other parents and carers and build a supportive peer network
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Services for parents and carers

  • Peer Connect: Regular opportunities for parents and carers to connect with others who share similar experiences. These include our Mum's Chat and MD Dads groups, as well as information sessions.
  • Mums’ Retreat: A dedicated retreat for mums of a child living with a neuromuscular condition. This two‑night retreat offers the chance to take a break, rest, recharge and connect with others in a supportive and understanding environment.
  • Social events: Regular opportunities for our community to get together, including our Peer Connect events like Community Day or family lunches.

Client testimonials

Testimonials

“The guide is comprehensive but not overwhelming, very practical and strikes just the right tone… it is also like a warm hug. ”

Bridget
Parent

“I found the Mums’ Retreats a blessing… time to get away from the everyday and relax and have a giggle with mums in similar situations.”

Sonya
Mums' Retreat attendee

“We have gained friendship, support, new ideas and knowledge of new services, supports and products.”

Alison
Mums Wine & Chat attendee
“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”
Effie, John’s Mum
“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”
Effie, John’s Mum
“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”
Effie, John’s Mum

How do I get involved?

To sign up or learn more about our events or programs, contact our friendly team.

Click the below button now or contact us directly on info@mdnsw.org.au or (02) 9888 5711.

 

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Say hello & contact our friendly team today.

Email: info@mdnsw.org.au

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Muscular Dystrophy NSW
ABN 11 774 587 436

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Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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