Muscular Dystrophy NSW | Building Strength Reaching Potential | Muscular Dystrophy NSW

TREAT NMD – DEC 2018 Newsletter
Check out the latest TREAT NMD Newsletter! Read More
The NSW Government will establish a new Ageing and Disability Commissioner to better protect adults with disability
The Commissioner will be a new, statutory authority that will strengthen Government’s ability to respond to abuse, neglect and exploitation of people with disability and the elderly in home and community settings. Read More
Treatment for spinal muscular atrophy is proving life-changing for Australian families
We love hearing the good news stories as a result of the Spinraza treatment. While the treatment is not a cure, it will provide more time and hope until a cure comes along. Read More
Calls to make beaches more accessible for people with disabilities
For people who use mobility aids, visiting Australia’s world-famous beaches is sometimes impossible. But there are moves being made to improve accessibility this summer. Read More
Australia’s first National Rare Diseases Framework
Here is some news that broke last month! Funding of $170,000 will be provided to Rare Voices Australia through the Government’s Public Health and Chronic Disease Program to enable the collaborative development of Australia’s first National Rare Diseases Framework and Action Plan Read More
Telecommunication Consumer Group ACCAN launches NDIA-backed telecommunication accessibility information portal
Telco consumer advocate group Australian Communications Consumer Action Network (ACCAN) has launched a resource portal for telecommunications products suitable for people with disabilities. Read More
International Day for People with Disability
In the lead up to the International Day for People with Disability on December 3 2018, we look at inclusion and accessibility through the creative lens. Read More
“I’ve lived a pretty good life”: Celebrating surviving 50 years with muscular dystrophy
Check out this story about Andrew Taylor who is living with DMD and has just celebrated his 50th birthday. Happy birthday from all of us Andrew! Read More
Peer Advisory Group
Our newly formed Peer Advisory Group (PAG) met for the first time last week and gave some excellent input into the MDNSW Online Communities project Read More
SMArties Meet Up
As part of our Peer Connect program we are hosting the SMArties Meet Up on Saturday 24 November at Hornsby RSL. The SMArties are a group of people living with Spinal Muscular Atrophy and their families, carers and friends Read More