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Training Program - Now Available
Comprehensive training
in neuromuscular conditions
for health and communitycare professionals
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Talking Point Summer Edition
Our latest edition of Talking Point has been released. Check out our summer edition and contact our office to receive your own free regular copy.
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Run an Event
We need your HELP! We always run out of funds before deserving causes but you can help us change this. We would love for you to arrange your own fundraising event for Muscular Dystrophy NSW!
Disability and Carers’ Day
Attend the popular Disability and Carers’ Day on Friday 30th August 2013 from 10am to 9pm. Click here for details.
Fundraising for Muscular Dystrophy
Reg and Kay Mclennan and their 14 year old grandson Joseph who has Muscular Dystrophy, organized a fundraising event at the Grafton District Golf Course. Mr and Mrs Mclennan hope the money raised from the event would improve the quality of life for those who suffer from this disease. The event was a huge success and approximately $3000 was raised! Click here for details.
TREAT - NMD Newsletter April 2013
TREAT - NMD organized meetings early this month that focused on treatments and support available for people’s lives who are affected by a neuromuscular condition. The COST Action meeting kicked off on 3rd April and focused on “Networking towards clinical application of antisense-mediated exon skipping”. On 18th-19th April 2013 the CARE-NMD International Conference took place and 140 delegates gathered together to discuss issues regarding “caring for people living with DMD”. Click here for more details.
First National Myositis Conference
First National Myositis Conference will be held in Adelaide, South Australia from 19th to 22nd August 2013. Click here to get more details from myositis.org.au
The Most Powerful Arm
Jacob Lancaster and Elie Eid’s both have Duchenne muscular dystrophy. They are currently doing their best to help collect 300,000 signatures on a petition for the government to match the $1.76 million dollars already raised to finance clinical trials to stop muscle degeneration in Duchenne MD. Read about The Most Powerful Arm and sign the petition here.
New name for NDIS
The National Disability Insurance Scheme is now changed to ‘DisabilityCare Australia’. Click here for details.
Congratulations to our new Boccia captains!!
A huge congratulations to our talented boys for an incredible achievement!!! 17 year old Daniel Michel was named Team Captain of the BC3 Australian Paralympic Boccia Squad, and 60 year old Dean Nottle was named Team Captain of the BC4 Squad plus National Captain of the entire Aussie Paralympic Boccia Squad! Well done!!!!
Boccia Headed for Australian Shores
The Australian Paralympic Committee has welcomed the announcement that Sydney will host the 2013 Asia Oceania Boccia Championships!! Click here for more information.
Prepare for NDIS Launch in the Hunter
Andrew Constance has announced a Specialist Group within the Department of Family and Community Services to enable NSW to work with the Australian Government on the successful launch of NDIS in the Hunter Region from July 2013. Click here for details.
Our triplets have MD
Life can get pretty busy for the family but these three gorgeous children bring joy and happiness to the family and everyone around them. Click here for the Read family story
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The Most Powerful Arm
We support ‘the most powerful arm’ project and encourage our supporters to add their name to the petition and get behind this initiative.
Muscular Dystrophy associations across Australian support the Every Australian Counts campaign, calling for the introduction of a National Disability Insurance Scheme (NDIS).
The Muscular Dystrophy Foundation and participating State based MD associations are delighted to have the ongoing support of the Little Heroes Foundation, which provides alternative pathways to meet the needs of children, young adults and their families.