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  • WELCOME TO
    MUSCULAR DYSTROPHY NSW

    Information, support and community for people living with neuromuscular conditions.

    GET STARTED

    • Specialised support
    • Connect to your community
    • Live the life you choose
    FINDING A SERVICE PROVIDER AND

    COMMUNITY THAT GETS YOU CAN BE HARD

    You deserve a provider that understands your neuromuscular condition, so you can get tailored information, support programs and connection to the neuromuscular community.

    You deserve to live the life you choose. Let us support you to make that happen.

    GET STARTED

    We are a NDIS registered provider!

    Specialised support

    We understand your neuromuscular condition, and we’re here to help you find tailored support as your condition changes over time.

    Connect to your community

    Join a community of people who understand you and what you’re going through. You’ll laugh, share, and feel supported knowing you’re not alone..

    Live the life you choose

    We’re here to connect you with the tools, services, community and programs you need to live the life you choose. We’re here to listen and deliver – not tell you how to live.

    WE UNDERSTAND THAT A NEW DIAGNOSIS OR A CHANGE IN YOUR CONDITION CAN MAKE YOU FEEL ANXIOUS AND ALONE.

    We’re here to support you.

    • Over 60 years of experience
    • Tailored support for all neuromuscular conditions
    • Registered NDIS provider
    • Over 2000 official members
    • Support for people across NSW

    GET STARTED

    Who we are

    HOW OUR COMMUNITY FEELS ABOUT…

    Adventure Camp:

    “The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

    He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”

    - Effie, John’s Mum

    OUR SERVICES

    SEE ALL OUR SERVICES

    YOU DESERVE TO LIVE THE LIFE YOU CHOOSE.

    A lot of people in NSW don’t know who to turn to when they’re diagnosed with a neuromuscular condition, or when there’s a change in their condition.

    At Muscular Dystrophy NSW, we’re here to connect you to a community of people who get what you’re going through, and offer you support programs that are built to match your needs.

    So the next time you’re lying awake, wondering if anyone understands what you’re going through, you’ll know that the Muscular Dystrophy NSW community is here for you.

    READ MORE ABOUT US

    HERE’S HOW TO GET INVOLVED WITH ALL OUR GREAT SERVICES, PROGRAMS AND COMMUNITY:

    1
    Contact us, or click “get started”, and tell us about yourself.
    2
    We’ll guide you to the right information.
    3
    You’ll feel supported, knowing you’re now part of a community that understands and welcomes you.

    GET STARTED

    LATEST NEWS

    2023-24 MDNSW Annual Impact Report

    Our Annual Impact Report for 2023-2024 is available now! Read on to see all the …

    LEARN MORE
    Interview with a Camper – Adventure Camp 2024

    Adventure Camp is a place where teamwork, challenges and fun come together in the great …

    LEARN MORE