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Chapter 5: Education

Resource Overview

This chapter provides practical tips to help you navigate education choices and transitions, and make sure your child is included, supported and able to thrive.

You’ll find guidance on:

Identifying what matters most for your child and their education
Preparing your child for school
Request adjustments
Communicating your child’s needs to teachers, staff and the school community
Strategies for building strong partnerships with educators
Planning for transitions
Tools and templates for evaluating what’s working, what’s not and next steps

This chapter helps families feel confident about choosing and preparing for the right education pathway, supporting smooth transitions and fostering strong school partnerships.

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Social Connection & Recreation

Ideas for sports, activities and social programs your child could join, along with tips for finding your community.

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Research & Clinical Trials

High-level information about clinical trials, including where to find details, who to talk to and how registries work.

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Download the Full Resource Guide

Prefer to have everything in one place? You can download the complete New Diagnosis Companion Resource Guide as a single, easy-to-read PDF.

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Contact Us

Say hello & contact our friendly team today.

Email: info@mdnsw.org.au

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Proud partnerships and memberships

Muscular Dystrophy NSW
ABN 11 774 587 436

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Contact

Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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