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Chapter 8: Managing Transitions: The Road Ahead

Resource Overview

This chapter helps you prepare for transitions – big and small – with practical guidance and advice from families who’ve navigated similar milestones.

In this chapter, you will find:

Understanding change and finding the right supports
Advice for managing mobility changes
Increasing support needs and working with support workers
Moving from paediatric to adult healthcare
Introducing new medical supports and equipment
Strategies for managing change

This chapter can be read at your own pace, whether you’re preparing for the next stage or want to feel more comfortable about what’s ahead. Use it as a roadmap to help your family adapt, stay connected and embrace each transition with knowledge.

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Education

Information to help guide your child through the education system, including tips and practical forms.

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Social Connection & Recreation

Ideas for sports, activities and social programs your child could join, along with tips for finding your community.

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Download the Full Resource Guide

Prefer to have everything in one place? You can download the complete New Diagnosis Companion Resource Guide as a single, easy-to-read PDF.

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A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Say hello & contact our friendly team today.

Email: info@mdnsw.org.au

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Muscular Dystrophy NSW
ABN 11 774 587 436

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Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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