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Chapter 3: Navigating Health Services

Resource Overview

This chapter helps you understand who’s who in your child’s care team and how each can support your family’s journey. With the right knowledge and support, navigating the healthcare system can feel more manageable and less overwhelming.

In this chapter, you will find:

An overview of your healthcare team and how they work together
Information about neuromuscular clinics in NSW
Guidance on coordinating care
Contacts for services and supports

This chapter is designed to help you feel informed, confident and supported as you build strong partnerships with the people who’ll help care for your child.

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NDIS & Other Government Support

A practical snapshot of the NDIS, including how to apply, along with information about other government supports – from payments to transport schemes.

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Education

Information to help guide your child through the education system, including tips and practical forms.

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Download the Full Resource Guide

Prefer to have everything in one place? You can download the complete New Diagnosis Companion Resource Guide as a single, easy-to-read PDF.

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Contact Us

Say hello & contact our friendly team today.

Email: info@mdnsw.org.au

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Muscular Dystrophy NSW
ABN 11 774 587 436

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Contact

Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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