Connections are important, especially in these times, so MDNSW is running online groups using Zoom.
Groups we are currently running online:
- Power Hour – for powerchair users 18-30 years old
- Mums’ Wine and Chat – For mums and carers, held on the third Friday evening of every month
- Zoom Boyz – for boys 8-15 years old who attend our camps to stay connected
- Girl Power – for girls 10-16 years who attend our camps to stay connected
- Info Share – for adults with MD and their carers
- FSHD Friends – a group for people living with FSHD
- SMArties – an online version of the SMArties gatherings, for people living with SMA
- Duchenne Families – a group for family members of people with DMD
- Limb-Girdle MD – a group for people living with Limb-Girdle Muscular Dystrophy
- MD Life, Love & Loss – for people who have lost a loved one with MD
Peer Connect Calendar – What’s on and when?
You can view our Peer Connect Calendar giving you a complete overview of our meetings planned for the next three months!
Find out what’s on this week on our Events page.
In order to keep our groups safe we are using best practice guidelines and we also have Expected standards of behaviour for online groups
A supportive place for people affected by neuromuscular conditions.
MDNSW believes that people with disabilities are experts in their own lives. They become excellent navigators of many systems, innovative problem-solvers and hold the key to accessing information, support and services they need to participate in everyday life.
Life stage transitions are significant for those with NMCs and often include substantial increases in support needs. Peer Connect groups ensure that participants are empowered throughout life stage changes through connecting with others with similar lived experience. Hearing about other people’s journey and experiences in accessing the community can make people feel like they are not alone. If others have had success, they feel more confident and motivated to try new things.
What happens in Peer Connect?
- share experiences, information and tips
- learn advocacy skills
- motivate yourself and others
- set and achieve goals
- build confidence and empowerment
- participate in the community
- increase contribution to community through leadership and fellowship
- get support from people who relate and understand your situation
What kind of peer groups do we run?
Due to COVID-19, all of our face-to-face gatherings have been postponed until further notice.