Tag: Duchenne

A donors journey with MD – Giving the gift of a donation

My journey began over 40 years ago when through a mutual friend I met my …

READ MORE
Making our voices heard

My Doctors Laughed Being a foster child, I have never had a family history to …

READ MORE
Nerds just like me

My name is Megan, I am 18 years old and will be 19 in November. …

READ MORE
Jack Out Of The Box

The JackOutOfTheBox podcast is your place to listen to the “OutOfTheBox” lives of some interesting …

READ MORE
John’s first time at Adventure Camp

Our Adventure Camp was held in April, and for 7 year old John who lives …

READ MORE
Escape from the Country

Hi, I’m Jack Wason, I’m 19, I have Duchenne Muscular Dystrophy and grew up on …

READ MORE
Diagnosis

An excerpt from The Ben Book: A Father’s Memoir appears below, with the author’s permission. …

READ MORE
Neuromuscular Fact Sheets

To address some of the issues identified by people with neuromuscular conditions in getting appropriate …

READ MORE
Living his best life

Dr Phil interviews 17 year old Jake and his Mum about not letting Duchenne Muscular …

READ MORE
A Comic Approach

Andrew Duffy is an English comedian and aspiring actor, who also happens to live with …

READ MORE
The True Value of Sport

Getting together with your mates and playing sport is a very Australian thing. From backyard …

READ MORE
My Journey to wear Green and Gold

Growing up as a kid in Australia, many of us dream of the chance to …

READ MORE
Scooter Adventures in the Land of the Rising Sun

Jamie, his family and his trusty Luggie Super motor scooter travelled to Japan for 3 …

READ MORE
This is Me – Scott

Scott is a young man with a plan. He wants to work in the travel …

READ MORE
地上ヘ (To the ground) – Accessible Japan

Just a quick bio – I’m 43, I have Duchenne Muscular Dystrophy, I  use NIV …

READ MORE
Peter Dalrymple – Mind over Muscle

“Mind Over Muscle” is a biographical short film by the late Peter Dalrymple, chronicling his …

READ MORE