Tag: myotonic

Is this YOUR Carer?!

I am Frances Turner aged 79 living in a house in Sydney’s Inner West and …

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Neuromuscular Fact Sheets

To address some of the issues identified by people with neuromuscular conditions in getting appropriate …

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A Grandfather’s Story

  Family Bio Our names are Patty and Peter O’Keeffe and we have been caring …

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Still Skiing After All These Years

My name is Michael and I’m 57 years old. I have Myotonic Dystrophy type 1 …

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Interview with a Grandmother – A Family Story Part 2

  Anne-Maree Warman shares the second part of her conversation with MDNSW Project Officer Carolyn …

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Interview with a Grandmother – A Family Story Part 1

Anne-Maree Warman’s work at the Teacher’s Mutual Bank, allows her to volunteer for MDNSW as …

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Team Connor – How we parent our child with Myotonic Muscular Dystrophy

An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your …

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