News
The JackOutOfTheBox podcast is your place to listen to the “OutOfTheBox” lives of some interesting people. The series is developed and hosted by Jack Wason, who is a member of the MDNSW community and lives with Duchenne Muscular Dystrophy.
Jack is currently studying a Bachelor of Computer Science at the University Of Wollongong. He moved from living in a small country town called Ungarie to live on campus. It was hard in the beginning to leave his parents and sister, but he is now making the most of living in Wollongong with a great new gang of friends and an awesome team of support workers to help me live independently. You can read more about Jack’s transition from living at home to independently at uni here.
You can stream episodes of JackOutOfTheBox on Apple Podcasts here or most podcast streaming apps. Happy listening!
Muscle Owl are a media and campaigns channel dedicated to raising awareness for muscular dystrophy and changing attitudes towards disability. They support campaigners, charities, scientific researchers, and discuss key issues across the community. Check out more Muscle Owl videos and podcasts here.
Muscle Owl are moving to more video content now, including this one on misdiagnosed and undiagnosed neuromuscular conditions.
Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” – Race Across America (RAAM). Hear more from Two Disabled Dudes
Two guys with Muscular Dystrophy talking about owning disability. These two friends met at a Camp for kids with muscular dystrophy, in America. More podcasts here: Man vs Wheelchair
Get ready to throw your assumptions about disability out the window! In “The Obvious Question,” Madi Lawson, a 21-year-old journalism student who has two rare forms of muscular dystrophy, takes on the assumptions, misconceptions and just plain ignorance others have about people with disabilities. But this isn’t your typical conversation about disability. In this podcast Madi talks with co-host Becky Smith and others about fashion, friendship, dating and more – challenging all the things you thought you knew about disability, but haven’t had the chance to ask about before. You’ll explore the glam and not-so-glam life of the real-life Wheelchair Barbie. So, buckle up – it’s gonna be a bumpy ride. Listen here: The Obvious Question
The Disability Visibility Project is an online community dedicated to creating, sharing, and amplifying disability media and culture. The DVP is also a community partnership with StoryCorps, a national oral history organization. Our aim is to create disabled media that is intersectional, multi-modal, and accessible. This site features a combination of blogs and podcasts.
These links have everything you need to know about podcasting:
Celebrate the arrival of Spring with a community picnic, catch up on NIRD highlights, and hear from MDNSW CEO Jess in a Q&A in your September edition of Talking Point.
At MDNSW, we love sharing the stories and voices of the people who make our community what it is. In this staff spotlight, we sat down with our CEO Jess […]
This year’s Neuromuscular Information and Research Day brought together experts, researchers, families with lived experience and community voices to share practical strategies for living well with a neuromuscular condition. From […]
Say hello & contact our friendly team today.
Email: info@mdnsw.org.au
Phone: (02) 9888 5711
Freecall: 1800 635 109
Muscular Dystrophy NSW
ABN 11 774 587 436
Phone: (02) 9888 5711
Freecall: 1800 635 109
Email: info@mdnsw.org.au
Postal Address: PO Box 3071, North Strathfield NSW 2137
Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.
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