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Category: News

Discovering Identity in Powerchair Football: Chris and the Power of a PhD

Katherine Wakeling July 1, 2026 No Comments

By Jaxon Taylor Sometimes the most fascinating subjects can become more than just a passion. They can become your whole world. Chris is an MDNSW community member who is currently undertaking a…

From the field to the page: A championship win, told by Jaxon Taylor

Katherine Wakeling May 12, 2026 No Comments

By Jaxon Taylor Last month, several MDNSW participants took part in the 2026 Australian Powerchair Football Association (APFA) Club Championship, Australia’s elite powerchair football competition. This national competition, held yearly, saw 10 teams face off to take home the title of Club Champions for 2026. Powerchair…

Introducing the New Diagnosis Companion for parents and carers

Katherine Wakeling May 7, 2026 No Comments

There are some life moments many parents remember vividly. The days or weeks after their child is diagnosed with a neuromuscular condition is often one of them. Life suddenly fills with unfamiliar words,…

How A Dash of Adventure brings wheelchair adventures and imagination to life for kids

Katherine Wakeling February 11, 2026 No Comments

Best friends Mitch and Julie have always shared a love of adventure and creativity, which shines through their debut children’s book A Dash of Adventure. It’s a story that celebrates…

Update: Short Term Accommodation is Now Short Term Respite

Katherine Wakeling November 19, 2025 No Comments

We’re aware of the recent NDIS changes to short term respite (STR), previously known as short term accommodation (STA). We understand these changes may affect some members of our community…

Get To Know the MDNSW Members Representing Australia

Katherine Wakeling October 20, 2025 No Comments

Two MDNSW members, Chris Hastas and Ryan Seck, have just competed in the Asia Pacific Oceania (APO) Powerchair Football Cup Champions title in Brisbane. They were selected earlier this year…

Q&A With MDNSW CEO, Jess Henry

Katherine Wakeling September 15, 2025 No Comments

At MDNSW, we love sharing the stories and voices of the people who make our community what it is. In this staff spotlight, we sat down with our CEO Jess…

Key Takeaways: Neuromuscular Information and Research Day 2025

Katherine Wakeling September 10, 2025 No Comments

This year’s Neuromuscular Information and Research Day brought together experts, researchers, families with lived experience and community voices to share practical strategies for living well with a neuromuscular condition. From…

Clients, Families & Friends Survey: What You Told Us

Katherine Wakeling July 9, 2025 No Comments

In March, we launched our annual Clients, Families & Friends survey, providing our community with the opportunity to tell us how we’re doing and where we can do better. After…

Neurological Alliance Australia Collaborate for Change

Madalyn Busby June 12, 2025 No Comments

By Carolyn Campbell-McClean Did you know… neurological conditions, which include neuromuscular conditions, are the fifth largest disease group in Australia following cancer, mental health, musculoskeletal and cardiovascular conditions? “The sad…

Upcoming events

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Neuromuscular Information and Research Day (NIRD)

An annual online seminar that brings together the country’s leading experts to provide our community with the latest neuromuscular research.

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Saturday 29 August, 1 – 4:30pm

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Email: info@mdnsw.org.au

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Muscular Dystrophy NSW
ABN 11 774 587 436

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Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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