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Chapter 2: Your, Your Child & Your Family

Resource Overview

This chapter offers practical guidance and advice from others who understand. You’ll find stories from families who’ve taken this path and clear information about the supports available to you.

This chapter helps you care for both your loved one and yourself – with insights on self-care, connection and getting organised early on.

In this chapter, you will find:

  • Tips from other families
  • Support and resources for carers
  • Talking to your child about their diagnosis
  • Supporting siblings and other family members

You can read this chapter at your own pace. Use it as a companion to feel informed, supported and connected – wherever you’re at in your caring journey.

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Navigating Health Services

An introduction to the members of your child’s care team, plus a directory of service providers across NSW you may find useful.
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NDIS & Other Government Support

A practical snapshot of the NDIS, including how to apply, along with information about other government supports – from payments to transport schemes.
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Download the Full Resource Guide

Prefer to have everything in one place? You can download the complete New Diagnosis Companion Resource Guide as a single, easy-to-read PDF.
Access the Full Resource Guide

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Contact Us

Say hello & contact our friendly team today.

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Muscular Dystrophy NSW
ABN 11 774 587 436

Registered CharityNDIS
Contact

Phone: (02) 9888 5711

Freecall: 1800 635 109

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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