Welcome to
Muscular Dystrophy NSW

“The Adventure Camp experience ended up being such a positive opportunity for John to develop independence and this was something I really wanted for him. Not only did he make new friends and enjoy new experiences like playing in the sand at the beach and abseiling, but he also developed new independent skills that he is still doing at home now like brushing his teeth every day and getting himself dressed.

He’s more confident and we both understand that things won’t fall apart if I’m not around. John can’t wait to go back to Camp next year and I am so grateful to MDNSW for making this life-changing experience for him possible.”

“Since 2019, I have been part of Peer Connect, where I have been able to share my experience of graduating from University, hoping to help younger guys with MD to see that regular things are possible, you just have to try.”

“The retreats are something I look forward to every year. I’ve met lifelong friends and we have become a close-knit group. I think it’s very important for young adults with neuromuscular conditions to have others we can relate to.”

“Without your support coordination we would still be struggling with [our family member’s] care… And no matter when or where you are, you always return my phone calls and emails and go searching for information to help us. So you have had a huge impact on our lives.”