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Category: News

Three people, two women and one man, smile outdoors in warm jackets. A crowd and trees are in the background, suggesting a cheerful group event.

Q&A With MDNSW CEO, Jess Henry

Katherine Wakeling September 15, 2025 No Comments

At MDNSW, we love sharing the stories and voices of the people who make our community what it is. In this staff spotlight, we sat down with our CEO Jess…

A virtual meeting screenshot featuring 25 diverse participants in a grid layout. Many have cheerful expressions, conveying a positive and engaging atmosphere.

Key Takeaways: Neuromuscular Information and Research Day 2025

Katherine Wakeling September 10, 2025 No Comments

This year’s Neuromuscular Information and Research Day brought together experts, researchers, families with lived experience and community voices to share practical strategies for living well with a neuromuscular condition. From…

Clients, Families & Friends Survey: What You Told Us

Katherine Wakeling July 9, 2025 No Comments

In March, we launched our annual Clients, Families & Friends survey, providing our community with the opportunity to tell us how we’re doing and where we can do better. After…

Neurological Alliance Australia Collaborate for Change

Madalyn Busby June 12, 2025 No Comments

By Carolyn Campbell-McClean Did you know… neurological conditions, which include neuromuscular conditions, are the fifth largest disease group in Australia following cancer, mental health, musculoskeletal and cardiovascular conditions? “The sad…

A group of people, including adults, children, and individuals using wheelchairs, walk outdoors on a dirt path wearing red clothing and accessories during Muscular Dystrophy NSW's Big Red Roll & Stroll 2025 event. Trees and greenery of Sydney Zoo line the background.

Big Red Roll & Stroll 2025 – Our Biggest Yet!

Katherine Wakeling June 11, 2025 No Comments

Muscular Dystrophy NSW’s Big Red Roll & Stroll on 10 May was our biggest fundraising event yet. We took over an incredible new location – Sydney Zoo – with more than 180 participants. They…

Sunday Soiree – Stories, Connection & Community Impact

Madalyn Busby April 30, 2025 No Comments

On Sunday, March 23, we were honoured to welcome partners, donors and friends – both longstanding and new – to our inaugural Sunday Soiree. Graciously hosted by the Montrone family…

Big Red Roll & Stroll heads to Sydney Zoo

Madalyn Busby April 24, 2025 No Comments

On Saturday 10 May, Muscular Dystrophy NSW (MDNSW) will host its annual Big Red Roll & Stroll at Sydney Zoo in Western Sydney for the first time. Nearly 200 participants…

Muscular Dystrophy NSW Appoints New CEO

Madalyn Busby April 8, 2025 No Comments

Muscular Dystrophy NSW (MDNSW), NSW’s leading not-for-profit organisation supporting people living with neuromuscular conditions and their families, has announced the appointment of Jessica Henry as its new Chief Executive Officer (CEO).…

Grow Bold Podcast

Madalyn Busby September 24, 2024 No Comments

Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is a writer, editor, and disability advocate. He works as a content producer for Clickability, an Australian…

Lives in Action – Documentary Release

Madalyn Busby September 24, 2024 No Comments

“Lives in Action” is a short documentary made inclusively, both in front of, and behind the camera. It features two members of the MDNSW community. It’s streaming on SBS On…

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Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

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