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Chapter 1: Understanding Neuromuscular Conditions

Resource Overview

This chapter offers guidance, reassurance and information to help you navigate the early days.

In this chapter, you will find:

Introduction to the New Diagnosis Companion
Support understanding neuromuscular conditions
Factsheets about a range of neuromuscular conditions
First steps after diagnosis
The team that’s here to help you
Where to find support
Information about Muscular Dystrophy NSW programs

This resource can be read at your own pace. Use it as a guide to feel more confident, informed and supported as you begin this journey.

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You, Your Child & Your Family

Advice from other families, support for carers, and guidance on talking to your child, siblings and wider family and friends.

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Navigating Health Services

An introduction to the members of your child’s care team, plus a directory of service providers across NSW you may find useful.

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Download the Full Resource Guide

Prefer to have everything in one place? You can download the complete New Diagnosis Companion Resource Guide as a single, easy-to-read PDF.

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A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Mums’ Chat

A monthly virtual catch up for mothers in our community to share stories and connect in a casual environment.

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Contact Us

Say hello & contact our friendly team today.

Email: info@mdnsw.org.au

Phone: (02) 9888 5711

Freecall: 1800 635 109

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Muscular Dystrophy NSW
ABN 11 774 587 436

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Contact

Phone: (02) 9888 5711

Freecall: 1800 635 109

Email: info@mdnsw.org.au

Postal Address: PO Box 3071, North Strathfield NSW 2137

Muscular Dystrophy NSW would like to acknowledge the Traditional Custodians of the land on which we live and work, and we pay our respects to their Elders past and present. We extend that respect to all Aboriginal and Torres Strait Islander peoples.

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