Latest News

This year’s Neuromuscular Information and Research Day brought together experts, researchers, families with lived experience and community voices to share practical strategies for living well with a neuromuscular condition. From […]

In March, we launched our annual Clients, Families & Friends survey, providing our community with the opportunity to tell us how we’re doing and where we can do better. After […]

By Carolyn Campbell-McClean Did you know… neurological conditions, which include neuromuscular conditions, are the fifth largest disease group in Australia following cancer, mental health, musculoskeletal and cardiovascular conditions? “The sad […]

Muscular Dystrophy NSW’s Big Red Roll & Stroll on 10 May was our biggest fundraising event yet. We took over an incredible new location – Sydney Zoo – with more than 180 participants. They […]

On Sunday, March 23, we were honoured to welcome partners, donors and friends – both longstanding and new – to our inaugural Sunday Soiree. Graciously hosted by the Montrone family […]

On Saturday 10 May, Muscular Dystrophy NSW (MDNSW) will host its annual Big Red Roll & Stroll at Sydney Zoo in Western Sydney for the first time. Nearly 200 participants […]

Muscular Dystrophy NSW (MDNSW), NSW’s leading not-for-profit organisation supporting people living with neuromuscular conditions and their families, has announced the appointment of Jessica Henry as its new Chief Executive Officer (CEO). […]

Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is a writer, editor, and disability advocate. He works as a content producer for Clickability, an Australian […]

“Lives in Action” is a short documentary made inclusively, both in front of, and behind the camera. It features two members of the MDNSW community. It’s streaming on SBS On […]