Latest News

At MDNSW, we love sharing the stories and voices of the people who make our community what it is. In this staff spotlight, we sat down with our CEO Jess […]

This year’s Neuromuscular Information and Research Day brought together experts, researchers, families with lived experience and community voices to share practical strategies for living well with a neuromuscular condition. From […]

In March, we launched our annual Clients, Families & Friends survey, providing our community with the opportunity to tell us how we’re doing and where we can do better. After […]

By Carolyn Campbell-McClean Did you know… neurological conditions, which include neuromuscular conditions, are the fifth largest disease group in Australia following cancer, mental health, musculoskeletal and cardiovascular conditions? “The sad […]

Muscular Dystrophy NSW’s Big Red Roll & Stroll on 10 May was our biggest fundraising event yet. We took over an incredible new location – Sydney Zoo – with more than 180 participants. They […]

On Sunday, March 23, we were honoured to welcome partners, donors and friends – both longstanding and new – to our inaugural Sunday Soiree. Graciously hosted by the Montrone family […]

On Saturday 10 May, Muscular Dystrophy NSW (MDNSW) will host its annual Big Red Roll & Stroll at Sydney Zoo in Western Sydney for the first time. Nearly 200 participants […]

Muscular Dystrophy NSW (MDNSW), NSW’s leading not-for-profit organisation supporting people living with neuromuscular conditions and their families, has announced the appointment of Jessica Henry as its new Chief Executive Officer (CEO). […]

Pete Timbs talks with his co-host Tristram and his support worker Dan Conaghan. Tristram is a writer, editor, and disability advocate. He works as a content producer for Clickability, an Australian […]