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Health, Support & Wellbeing

  • Living with NMCs

    Stories from people with neuromuscular conditions living the life they choose.

  • Support Workers

    Managing support workers, and learning to be a boss - it can be a learning curve for many!

  • Mental Health

  • Therapies

  • Living with NMCs

    Neuromuscular Fact Sheets

    To address some of the issues identified by people with neuromuscular conditions in getting appropriate

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    Growing Up with Spinal Muscular Atrophy

    Maija, a young girl in New Zealand talks about her life with SMA, and the

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    Living his best life

    Dr Phil interviews 17 year old Jake and his Mum about not letting Duchenne Muscular

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    Advice From Strangers

    I was catching the train through the inner west of Sydney a few weeks ago,

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    Don’t go down without a fight

    Muscular Dystrophy Queensland created a platform for people in the neuromuscular community to share their

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    Breath of Fresh Air

    For a long time I had known that the likelihood of needing nocturnal ventilation was

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    Living a Full Life with Muscular Dystrophy

    This video from Canada is about a man with Becker MD, who challenges society’s assumptions

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    Living with Dermatomyositis

    Welcome. My name’s Rowena Newton and I’m a 40 something wife, mother of two children

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    Gatecrashing MD – Living with an undiagnosed, adult-onset neuromuscular condition

    When I walked out of the office of an Ad Agency in Pyrmont one Friday

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    Living with SMA

    My name is Ellie Robertson and I am a woman living with Spinal Muscular Atrophy

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    8 days a week – Support Workers and How I Learned to Be the Boss

    Support workers. I don’t know about you, but sometimes I feel as though they are

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    Team Connor – How we parent our child with Myotonic Muscular Dystrophy

    An interview with Nikki Rabold-Cowley Can you tell me a little about yourself and your

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    Finding my way, with CMT

    Living with Charcot Marie Tooth Syndrome (CMT), a type of neuromuscular disease, can be seen

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    Living with Inclusion Body Myositis

    My name is Gordon Osmond, I am a retired acrylic and oil artist and I

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    Kids meet a guy with Muscular Dystrophy

    This cute video from America features Amin Lakhani talking frankly to kids who are curious

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    This is Me – Scott

    Scott is a young man with a plan. He wants to work in the travel

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    Fashionably yours

    This video features a young woman named Ellie DP, from Essex, UK. She is a

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    Normal, Normal

    Philip Hojgaard-Olsen is a 19 year old Australian whose biggest dream is to move out

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    Peter Dalrymple – Mind over Muscle

    “Mind Over Muscle” is a biographical short film by the late Peter Dalrymple, chronicling his

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    Support Workers

    There’s no ‘I’ in Team: Lessons in creating your own dream team

    A self-directed approach enables me to recruit and choose my own team of staff who

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    8 days a week – Support Workers and How I Learned to Be the Boss

    Support workers. I don’t know about you, but sometimes I feel as though they are

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    The Journey towards Self-Management

    Back in 2007 I worked as a research associate on an evaluation of the pilot

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    Mental Health

    Waiting for your story

    That’s right, if you’re interested in this topic, you might have something to say about

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    Therapies

    Waiting for your story

    That’s right, if you’re interested in this topic, you might have something to say about

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